Everything about this new disease seems to have come out of a bad horror movie.
There seems to be a new disease that's causing a scare in parts of the US, and it's not the bird flu. Morgellons is the name of this new disease that seems to be surfacing, and everything about it seems to have come out of a bad horror movie.…
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226 - Danser
A Challenge to Celebrities Who Quietly Suffer From Morgellons Disease
I have a challenge to Celebrities around the world that are silently and privately suffering from Morgellons Disease; when your symptoms have been reduced or eliminated, who among you will become the "Spokesperson for Morgellons?"
Morgellons disease is just as real as HIV was 30 years ago. The only difference is 30 years of research and study by the medical community that has gone in HIV. This will only occur when Morgellons hits a certain 'plateau' of patients and research attention.
What is truly needed now is a celebrity who has Morgellons and is willing to tell the world about this horrific disease. This will only work if the celebrity has Morgellons and has eliminated their symptoms to the point where they can really function in this capacity.
Let's tell the truth here; 99.99% of the medical profession has never even heard the word 'Morgellons' yet alone has been willing to open their minds to the possibility that it might even exist. Only those who have experienced Morgellons can truly 'know' what this is unless they are living with some one who suffers every waking moment of their lives with this terrible disease on their minds. How could they not? The feeling of biting and scratching 24/7 will certainly draw anyone's attention.
The author of this post deals with Morgellons victims daily, hundreds each month as this pandemic explodes across our planet. He hears their cries of pain and suffering, the loneliness and isolation they experience and most horrific is the way the medical community is quick to diagnose Delusions of Parasitosis (DOP) without the benefit of an exam or lab tests (to date all known lab test result in nothing being found).
What the MD's have forgotten is that in order to have DOP, the patient must be schizophrenic because DOP is a sub-set of schizophrenia BEFORE they can be diagnosed with DOP. If their patient is not schizophrenic, DOP is not possible.
What is missing here is public awareness. To date 40 US Senators have written to the US CDC requesting an investigation. It took 6 years for the CDC to begin their investigation into this new disease. It has now been nearly a year and a half since the CDC began the investigation and their conclusions are expected in May of 2009. The question to the reader is: What sort of conclusion might you expect if you funded such an investigation if you only funded it to the tune of $338,000? You decide.
There is a safe and effective way for Morgellons victims to reduce or eliminate their Morgellons symptoms; Nutrasilver. This natural mineral has proven in thousands of cases to eliminate most, if not all cognitive and lesion symptoms within a few short weeks. Although not a cure, Nutrasilver has an amazing ability to push this disease out of the body from the inside rather than treating with lotions and potions. This can be very frightening, but the good news is that it is coming out of the body.
I am aware of several Celebrities who have become "symptom-free" from Morgellons disease using Nutrasilver and I challenge them to step forward and become the "Poster-child" of this grass-roots movement of Morgellons suffers. There are obvious personal benefits to doing this, but the most important thing a Celebrity can do for the Morgellons movement is to step up and make the world aware of this life-stealing disease and let Morgellons victims know they can get their lives back using Nutrasilver.
To see proof of how Nutrasilver affects Morgellons victims. Caution; this site is NOT for the faint-of-heart.
227 - Danser
Morgellons Economics; Who Wins and Who Looses?
I have spoken to well over 1,000 Morgellons sufferers in the past 3 years during my direct involvement with Morgellons Disease. Most are ordinary people from every walk of life while some are medical professionals themselves infected with this disease or care for those who suffer.
Morgellons Disease is characterized by these symptoms: non-healing lesions, ‘brain fog’, depression often leading to suicide, multi-colored fibers growing from their skin and most disconcerting, the relentless sensation of being bitten on and under their skin. The Morgellons Research Foundation, located on the campus of Oklahoma State University, states that there are approximately 93 typical symptoms and each individual with Morgellons has some but not all of these symptoms.
Most Morgellons victims tell the same story; they are diagnosed with Delusions of Parasitosis (DOP) and labeled permanently in their medical record as having ‘Mental Health Issues”. Most doctors will not even look at the lesions and tell their patients to “stop scratching yourself.” Those who are prescribed medication through misdiagnosis spend a great deal on medications that effectively do nothing for them. Many follow the message boards on the Internet and desperately chase lotions, potions, chemical and herbal remedies only to experience no improvement. Those who suffer the longest often tell me of how the medical profession takes their money and all they get is worse.
Many Morgellons victims tell the story of how they have lost their jobs, homes, savings, and family and just about everything else trying to get relief. They feel alone and isolated and often ‘cocoon’ in their homes. I hear this far too often. Some call me crying out of desperation and loneliness; it breaks my heart.
Most medical practitioners seem to be into Morgellons treatment just for the money. There is a PhD in Los Angeles who knows of an effective treatment but does not use it because she does not make any money on it. There is a Nurse-Practioner from Texas whose medical license was suspended by the Texas Medical Board for prescribing antibiotics too frequently who now commutes to San Francisco under a California license to treat Morgellons patients. She continues to administer antibiotics to Morgellons patients with no results. She charges $500 for the initial visit. All the Morgellons patients received for their hard-earned money is they get worse.
Imagine, over 40 US Senators and Congresspersons have written to the US Centers for Disease Control (CDC) requesting them to conduct an investigation into Morgellons. It only took six years for them to begin their investigation in Oakland, California at Kaiser-Permanente Hospital with funding of a mere $338,000. That amount of money is barely enough money to begin an investigation yet alone complete one. Their investigative conclusions are due in May, 2009.
As this infection continues to spread globally, little scientific attention is being paid to those who have Morgellons and suffer with no hope and no help from the established medical and scientific communities. Apparently, there are not enough people who suffer Morgellons for scientific research to make research financially beneficial to fund the research. Today, only a very small handful of individuals and small organizations have attempted to discover the cause(s) and methods of disease contraction and transmittal of this mysterious disease. When I ask a half dozen scientists what Morgellons is, I get 6 different answers suggesting that no one really knows very much about this horrific disease.
Although every major US television network has reported on Morgellons, 99% of the medical profession and the general public have not heard of Morgellons.
This is exactly what happened 30 years ago when patients presented with symptoms also classified as ‘Delusional’ but is now well-known as AIDS/HIV. Those early victims endured the same neglect and abuse as Morgellons victims do today; denial, labels of being delusional and general neglect. Until enough people were infected, they were ignored by the mainstream medical community.
So what do Morgellons sufferers do to eliminate their suffering? They commit suicide as one of my friends did yesterday. We all have a responsibility to take care of each other. Until enough people suffer from Morgellons, it will remain “unprofitable” to conduct real scientific research into this horrible pandemic disease. Clearly, the Winners are the suppliers of medical goods and services and the Losers are the Morgellons sufferers.
228 - sunshine23
I am new and need some help dealing with Morgellons. I am 23 years old and horrified at what is happening to me. I can't get rid of my lesions and I am very scarred. Please help me with any information that you may have that will help me. I am so exhausted all of the time and my life is falling apart. I feel so alone and nobody will help me. My family thinks that I am crazy. What do I do? I am not crazy.
229 - Katie
It could be that the disease is caused by bugs that lay eggs in living flesh. Or, maybe the ticks that carry lyme disease also carry the eggs of the Morgellons bug, and when they bite a person or animal, the eggs travel to the human, where they proceed to the next stage of their life. Once the bugs come out of the flesh, they search for ticks or mosquitoes to use as carriers of new eggs. The fibers might be part of the coccoon the bugs make. What kinds of bugs are they? can someone describe them or provide links to pictures for me? Maybe they are all the same type of bug. As we, humans, spread into areas of the world where we have not lived before, we ARE going to come into contact with parasites that have not encountered us before. Scientists h a v e recently discovered lots of new species of bugs and microbes in rainforests and other areas of the world not visited before by people that often. The differently colored fibers may be caused by different strains of the bug. The Morgellons bug might have nothing to do with GM foods after all... The first sympthoms have been recorded a long time ago (1690), WAY before the GM foods appeared, therefore ruling out any government conspiracies. I am adding this website to Favorites, and I will watch for links to pictures of the fibers, and especially, the bugs.
If there are any scientists or doctors who are able to get a sample of the bugs, could they please get the genome of these bugs sequenced and entered into the NCBI database?
Source
P.S. If you are wondering who the h ell am I, I am a high school student, who is not affected by the disease, but who wants to figure out just what on in the world is going on here. During my free time, I study biology, including molecular biology.
230 - tonya -26yrs.
Hi to everyone with morgellons,I to have had morgellons for the last 6 mth,or so.I am all alone in this because my family thinks it's in my head.my own husband calls me insane,and it's frustrating and it hurts.Not just that I no my 3 kids have it too,also my husband,but he would never believe that.Matter how much proof I have showed him,he brushes it off as lint or debris.I even pulled a small noddle looking thing out of one of his pimple sores on his back,then showed it to his face.When it 1st started I had no idea of what was going on with my skin.I thought I had gotten scabies from my neighbor,because he told us his son had got it from his friend.2nd I thought we had bed bugs,stiff kinda do.I think it may all go together i don't no.All i know is that i have pulled tiny,tiny black and brown bugs from my skin as well as my kids.I can also find what i believe a parasite crawling on my arm hair sometimes.I pull it off with tweezers,3rd i thought i had a parasite bug infestation on my body and in my home.Which i guess is true cause parasites are part of morgellons.4th I then believed i had lime disease,and again i still kinda due.as i have read lime disease is also a factor in morgellons.My family and i had these 1st signs.#1WE ALL FELT A CRAWLING SENSATION ON OUR ARMS AND ARM HAIR.#2 WE WERE ALL ITCHING IN THE BEGINNING,FOR ME IT WAS MOSTLY MY ARMS THAT ITCHED. #3 I WOULD FIND BLACK PEPPER LOOKING SPECKS ON MY BODY AND HUSBANDSKIDS,THEN WHEN AWAKING IN THE MORNINGS I KEPT SEEING THE SAME BLACK SPECKS ALL OVER OUR SHEETS.#4WE HAVE FOUND FIBERS ON OUR BODIES,OF BLUE,BLACK,RED AND WHITE.THEY ARE STILL ON OUR BODIES THOUGH OUT THE DAY,AND THEY ARE NOT JUST FOUND IN OUR SORES.#5WE KEPT SEEING LINT ALL OVER OUR HOME AND OUR LINENS,LINT WAS EVEN ATTACHED TO OUR BATHROOM CEILING AND KITCHEN.I SPRAYED BLEACH ON BOTH CEILINGS AND OUR BATHROOM HAS NOW STARTED AGAIN HAVING LINT BALLS THAT SEEM TO GROW OUT OF IT.I HAVE SOME MILDREW PROBLEMS IN MY BATHROOM SO I THOUGHT IT WAS JUST DUE TO THAT,BUT THERE'S SOMETHING WEIRD ABOUT IT.THEY SEEM TO GET BIGGER IT YOU LOOK AT THEM DAILY AND THEN IT SEEMS AS IF THEY FALL TO THE GROUND LIKE HATCH OR SOMETHING.#5I ALSO THOUGHT I HAD MITES A FEW DIFFERENT KINDS,I WOULD FIND THE TINIEST RED BUGS ON OUR BED AND SHEETS AT THE START OF ALL OF THIS.#6 I WOULD NOTICE LOTS OF DEBRIS ALL OVER OUR FLOORS.#7 WE ALL FELT BITING,STINGING AND BURNING SENSATIONS.WE ALL STILL DUE BUT IT'S MILD NOW.#8I WOULD FIND THESE WHITE LOOKING STRINGS OR FUZZ IN MY KIDS HAIR ALL THE TIME AND MANY OF THEM,THEY STUCK TO THE HAIR AND ANYTHING IT TOUCHED.ALSO THE MOVEMENT OF THIS TYPE OF DEBRIS IN THERE HAIR IS VERY ODD.#9 MY HUSBAND AND I HAVE BEEN HAVING EXTREME FATIGUELAZINESS.#10MY HUSBAND AS BEEN HAVING PROBLEMS WITH HIS MEMORY,AS FOR ME I HAD ALREADY SUFFERED FROM YEARS OF MEMORY LOSS,BUT I CAN SAY IT HAS DIFFIDENTLY GOTTEN WORSE NOW.(These are the top 10 things i can remember at the begging of our morgellons problems.I need to add that i have not yet seen a doctor for morgellons,i have collected many samples for the doctor but found out throw internet that it is best not to bring in samples or they will think you are crazy.(I have been to 3 different doctors at the very beginning of all this,before i had found out about morgellons.)I had never even herd of it before looking on the internet,i just typed in my symptoms and i was lead to a morgellons web site.I read a bunch of stories from families and many people all over.Back when i seen 3 doctors the 1st DR.i went to said it may be scabies and gave me some cream,i showed her my samples of these white things off my arm hair that i felt crawling on me,and she told me to put the lid back on and did not even look at my sample.The next DR.i went to i told him that i was very stressed about bugs and i felt as if they were under my skin and i told him how long it would take me to prepare dinner for my kids or anything for that matter,because i would have to wash everything even if wash already.It took me 20min.to wash a plate that had already been wash and put away.I was so into getting these bugs and there debris off of everything,and i believed they were everywhere. I once stayed up for 3 nights in a roll cleaning and picking at my skin like i was on drugs or out of my mind.I think this morgellons has that kind of affect on some people,and i don't know why and i do not even know for 100% that i have morgellons,i diagnosed myself and i will soon be seeing a doctor at a new clinic to be 1st tested for lime diseases.I am sorry this is long,but i wanted to give my detailed experiences to help others that are going though what i am going throw. I know that for me it has helped reading stories and comments by other who claim to have this disease. So many things i read are just like the things i have gone throw or are still going throw.Other thing i want to add is i believe that not just my family inside my home has morgellons,but i also notice signs on my grandma,which would stay over night every so often.Also my 2 sister in law that are only 4 and 7 yrs.They stay over all the time to play with my kids,and i baby sit them too.I now ask where or who did i catch this morgellons from?Did my mother in law and her kids give it to me and my family?Was it our neighbor across from us who has dealt in drugs in the past and it not the cleanest person? Not to mention him and and his kids did give my kids head lice and also possible scabies cause he told me to get my kids treated so that they would not catch it from his kids,then he told us his kids had pin worms and to check our kids for it in case they gave it to them so they could be treated.Well the only thing my kids did catch from them was head lice which they never had before,so even that upset me.Does anyone have any info on how to get morgellons?I believe it is contagious. Oh i to have pulled fibers out of sore and this strong rubber band like material that i can only get bits off of when i pull on it and it hurts badly.Is it possible that we are just crazy people?
231 - Slovenia
I am a Brit living in Europe and have experienced this since January 09. All doctors where I live in Slovenia have proved obstructive and totally unhelpful. I was collapsing in the street, having severe heart palpitations, terrible headaches etc etc and yet diagnosed with dermatitis. So I went to my previous country, Holland, in the hope of sympathetic treatment. Quite the opposite, one doctor I shall name because of her most disgusting and totally unprofessional manner: Dr Suzan Smeenk of Ritz and Smeenk, [Personal contact info deleted] Amsterdam. Please feel free to tell her exactly what you think of her. When I told her how awful I felt she actually told me to go and kill myself - shouted out in the public reception area too. Oh, and that she was too busy and had patients to see who were ill. And "why don't you get back to your own country." She even conned me (for a fee of 60 euros without even a proper receipt) into believing she was sending me to a "specialist" who turned out not to exist at the local hospital and who in reality was a junior doctor in accident and emergency. She had the audacity to email me a few days later saying I was not only fit and well but suffering from parasitiphobia. She is clearly very much a doctor to avoid if you have Lyme or Morgellons.
Give these so called doctors a very wide berth if you think you have this disease. They not only do not understand but don't want to understand. It absolutely vital you go and find an ILADS doc/clinic as most Morgellons sufferers have Lyme. Then mention the Morgellons. I am on long term treatment from a clinic in Augsburg Germany and so glad I found out about them.
As for you Dr. Smeenk you have not heard the last of this. I don't take your kind of attitude from anyone least of all from a doctor who supposedly has taken the oath.
232 - penny smiley
I have morgellons do you a doctor near ohio that treats morgellons
233 - Jimmy
Its certian now that I do have springtail.And I have saved the springtail as proof could even make out visually under magnifacation the foot used to jump or spring.Along with many fibers and moltings casings as well.The fibers are produced by the srpingtail.It captures thier food in the wild something like a spider spins a web.I have pictures of springtail and the fibers from a specialists web site.I started taking salt bathes of half a box twice a day and they practially pored out of me most dead some just crawled out of me and left.Must have been many hundreds of them in mostly my scalp.Not many on main body.They often feed on mite eggs.First I had scabbies and I now think thats what atracted the springtail to me.Used a lot of composted leaves last spring to mulch my garden.I think the springtail sensed I was infected with scabbie eggs and saw me as a host.Selsum Blue good lather on scalp then a handful of salt is working very well. Has almost cured me.I did 20 minute to 40 minute soaks.The salt on the scalped stung bad at first. Now it does not.About 20 bathes so far only a couple of stings almost no fibers now. Much hair loss.They proabally ate my folicals may be pernament. The salt baths work!
234 - Lazarus
Hi,I,like so many others that are suffering from this horrible dilemma, wish only to be rid of it and never have to deal with it again.As most know by now that is not going to be so easy to do.Yet,there are certain things that some of us,possibly by mere accident, have discovered help the suffering become more bearable.Through sharing of unbiased information,certain things have been proven to help tremendously with this disease.First,everyone needs to realize that the external component,the lesions,they are simply a mirror of an internal aspect that is just as horrible.The concerns about the skin are best approached with a daily regimen consisting of a "shower" using a bodywash containing 4% Benzoyl Peroxide.A family doctor or Dermatologist can have it prescribed.At the same time request that they also prescribe Silverdeen cream,the good stuff for burn victims.Baths are saved for softening the skin and scabs which with care can be removed in order to eject the larvae and eggs living underneath the scab.If disturbed by your hand the eggs will hatch elsewhere on your body,closeby or to some unknown new spot where a new lesion or nest wil develop.Other insects find the smell from the lesions irresistable.This smell tells them that you are ready to inhabit for purposes of reproduction.I have pics of many different life forms from these lesions.The primary life form I chooose not to discuss in this forum, for now.Back to the regimen,after the bath,shower,then pat dry so as not to spread any of the lesion matter.APPLY THE SILVERDEEN CREAM HEAVILY!You can wrap it with gauze and tape it securely, not tightly, as it may become uncomfortable.If wrapped for several hours or overnight,prepare to find something ugly and nasty looking.Being rough with the larvae may rupture them and cause their antigens to be released,which is very dangerous as it is like some horrible venom being injected into your bloodstream.The blood pressure rise is substantial,along with the ringing in ones head and a brain fog from the Twilight zone.The larvae extend downward towards the bone and have hooks on their exterior that keep them in place.Yes,they need to come out but please be cautious as removal could have dire results,or at least an inflammation that burns and lasts for days.These larvae are also under the swollen bluish rim of the lesion.A tough and dry scab allows the larvae to die and be reabsorbed back into the host body.A sharp stainless pair of medical tweezers can be used to flip them out at the right time,which is up to you.Just let the cream soften them for a long time,and please be patient.Thin latex gloves are a must.If lesions are being scratched at night then wear cotton gloves to bed.Wear silky night wear that is a little tight, along with socks and a long set of sleeves.Internally I use Equimax Horse dewormer that has two main ingredients,Ivermectin and Prazquantel.The dispenser is a hypo like plastic syringe that is weight adjustable,use twice your body weight on the scale setting.Do this once a week for 4 weeks.After each dose be sure and check your stool.Try not to faint as you will fall in.HaHa,Humor is also a great healer.I have some great pics to share and lots of tips to consider[personal contact info deleted].I know this approach is strange to most of you,but so is this disease.No one needs to commit suicide over this, as I'm willing to donate my time and knowledge to anyone in great stress and that is afraid.Please contact me and I will try to help. Much to consider,S.
235 - Lazarus
Is this site only collecting info and not helping to provide a mechanism where sufferers can obtain the real info on this dilemma?Why do you block the info that is suggested by the ones that know what's happening?Time is the last thing that we want to be robbed of.The truth is out ,so please stop deleting the progess that needs to be provided,by not showing people how to contact each other and share the info that we all need so greatly.Why no pic showing as I have the mechanism isolated for all to view.What is the motive of this site?Surely it is not to help the progession of a cure as much info is being blocked!Whats Up with this forum?
236 - Ajinkya
*After initial pain,lonlyness can be bearable......
237 - buddy
smileykins, i have suffered from this condition for 4 years now. this affected me and my dog, and i believe i spread this condition to 3 of my close friends, i don't think they create fiber like me, but i see the morg. fibers on them when they are around me, some started itch and scratch when i am around them, smileykins, you don't really know what we are going through, and don't say we are crazy people, i sincerely hope you will contract this desease, you need to have this morg. and you need to be called crazy when you are suffuring in hell
238 - Betty Hyatt
My daughter has had this for 3 yrs. I finally found something that is killing the parasites and healing the sores. It is BEDBUG SPRAY. She has used for 2 weeks and is drying up DEEP sores on her back,face arms and legs.She has suffered,Now the bugs die and fall out of the sores and scars are fading
239 - jeannie joint
I HAVE
240 - jeannie joint
I have had these same syptomes I did'nt know what was going on am so glade that I know there are other people to I thought I was the only one.
[Personal contact info deleted]
241 - Jan DuVall
My son has suffered with what he is sure is Morgellon's Disease for 7 years or more. He has been to some dermotologists and infective disease doctors who thought he was crazy. They do no testing whatsoever and don't even take time to look at lesions on his body. He lives online to try and find cures and ways to relieve this horrible disease. I think people don't listen or become aware until it hits someone they know or love.Even we were slow to take it seriously as you don't know what to do or say. With all the stuff written by people that are afflicted with this and those who know others afflicted,I agree that this will some day be taken seriously like HIV. I feel so sorry for my son and all those suffering from this. Once you have it, it becomes your life! I'm sure you become consumed with it. I'm sure you can become suicidal. Who wouldn't!!! Too many people reporting the same symptoms! Sure makes you have no respect for most medical doctors that would tell you it's mental! If it's mental how did all the lesions get on one's body!??? If they would only take some time and do some testing or just plain looking at your body. An animal at the vets office is treated better....
242 - Orion
My mother has this and i was wondering if you read this please sign this petition for her i started it for her and if i get enough signatures im going to do my best to get it to the government for this to be known i dont want anyone to ever suffer through this again. So i would really appreciate the help
243 - judy mitchell
After my teeth started getting loose and getting sore in my mouth I started taking vitamin D-2000 to hopefully stop my teeth from getting any looser... also started taking vitamin B-100 complex 100 to help fight infection...
I've been doing this for about 2 weeks... amazingly my symptoms have improved a good 80%... hoping it continues to improve and hopefully someday be gone altogether...
244 - CARLA
iT'S TRUE THIS DOSE EXIST. U GET IN THE SHOWER TO WASH THESE THINGS OFF AND YOU CAN FEEL THEM A PINCHING LIKE SENSATION & THEN THEY SEEM TO CONNECT TO OTHER PARTS OF UR BODY. DOCS SAY ITS DANDRUFF.
245 - Bill
I am getting better. I moved from the house were I used to live. The water had a high metal content. I use cortizone 10 egzama cream, biocleans which is a soap, acene medison with benzysol peroxide,saline solotion with disodium phospate and monosodium phospate, aloe gel with sd 40 alcohole. The most important thing is your water must not have a great deal of metals in it or the fibers will grow every time you take a shower. The fibers are not alive they are a substrate which only grows in the presents of disolved metals. If you are not treating this start now. It takes months to get better, If it does not kill you first. My uncle died from it to weeks ago. None of his care takers knew what to do, and I did not know about his symptoms util 1 week before he died. Start a regiment of treatment clean care makes an acne kit which has three creams in it, and is very helpful. Banna boat makes a sprayable aloe gel with sd 40 alchole its great. Good luck.
246 - Judy Whetsel
This has been life saving information. I too am experiencing these problems and don't know where to go. I think I must leave my apt. and move. My clothes, and everything I have is affected. The sores are never going to leave. Please help. How do you do the salt bath? Thank you for any help. Judy
247 - tiptoe
It is not limited to the U.S. Morgellons disease is world wide.