Everything about this new disease seems to have come out of a bad horror movie.
There seems to be a new disease that's causing a scare in parts of the US, and it's not the bird flu. Morgellons is the name of this new disease that seems to be surfacing, and everything about it seems to have come out of a bad horror movie.…
Article comments
— go to most recent comments26 - david
The reason the Dermies and Shrinks are insisting that this is delusion is because they know how terrible and real it is. And they suspect it is untreatable. So they prescribe antipsychotic drugs, in an effort to subdue the patients. Be aware that at the same time, some of them are experimenting, hoping to be the first to find a way to kill this parasite. Check it out! ORAP, one of the commonly prescribed antipsychotic drugs, contains BOTH a vermicide AND an antihelmintic. Ask yourself WHY!
rxlist.com
chemicalland21.com
27 - david
ORAP (pimozide) is an orally active antipsychotic agent of the diphenyl-butylpiperidine series. The structural formula of pimozide, 1-[1-[4,4-bis(4-fluorophenyl)butyl]-4-piperidinyl]-1, 3-dihydro-2H benzimidazole-2-one is:
GENERAL DESCRIPTION AND APPLICATIONS
Benzimidazole is a white to slightly beige solid; melting at 172 C, boils at 360 C, slightly soluble in water, soluble in ethanol. It is a dicyclic compound having imidazole ring (containing two nitrogen atoms at nonadjacent positions) fused to benzene. Benzimidazole and its derivatives are used in organic synthesis and vermicides or fungicides as they inhibit the action of certain microorganisms. Examples of benzimidazole class fungicides include benomyl, carbendazim, chlorfenazole, cypendazole, debacarb, fuberidazole, furophanate, mecarbinzid, rabenzazole, thiabendazole, thiophanate. Benzimidazole structure is the nucleus in some drugs such as proton pump inhibitors and anthelmintic agents.
28 - Zombified
I've had this disease for twenty years now. I had a bump on top of my head for many years, and it felt like something was biting me every now and then. I killed it with insecticide, dropping a few drops on it and rubbing it in. It went away after a few days. I believe this disease to be a fungus that assimilates its cells into insects. TRY TREATING IT WITH VAPOR RUB, SATURATING THE SKIN. THIS SEEMS TO HELP GET RID OF THE FIBERS AND BLACK-SPECK-AND-PEELING SKIN NETWORK THAT BUILDS BETWEEN THE LINES OF MY FINGERPRINTS.
29 - Joseph
I had Morgellons in 1993 and 1994 while living in San Francisco and Oakland. Only white fibers.Passed
the sanity test by shrink at U.C.S.F. med cntr.Most
docs there said I was crazy.One doc gave me one dose
of ivermectin which was only partially effective.
I then healed myself using essential pine oil on skin every day for many months.I have been fiber free for 12 years.
Yes it is for real. I know the nightmare.I don't know if this will work for anyone else. It takes a long time. I kept cleaning house and clothes and everything. There maybe be more than one cure.
I wish I had kept journal and made videos with people to witness.
Some people who think they have it are confused.
Other people really have it.
Some good photos and videos with the fibers sticking out of skin will do more than waiting for
CDC.I know its hard to know to what to do when you
have it. Please get a camera.
30 - Prichard
If you are interested in Morgellons Disease or experience Morgellons symptoms, I would like to invite you to participate in the Morgellons Disease Information Community and Message Board at morgellonsite.com
31 - STM
The black fibres people are describing sound very much like ingrowing hairs, which tend to wind around inside a lesion. This is a very common condition. Often, it appears to be more than one "fibre" as in the process of winding, or curling, inside the skin, the hair will often break. Many of the other symptoms sound like various forms of eczema and dermatitis, seborrhaeic and/or otherwise (or blackheads, as one astute observer points out).
It's highly significant that the vast majority of patients reporting with this condition are also suffering from Lyme disease, which is a tick-borne illness very common in rural parts of the United States (hence the prevalence in Texas) but not confined to rural areas. One of the major symptoms of Lyme disease is a dermatitis-like rash, known as erythema migrans, which can produce the characteristic track marks also described above.
Above all, don't panic. Lyme disease can be treated with antibiotics and most skin conditions will clear up with treatment. But left untreated, it can become very serious. I know from personal experience. Appropriate topical treatment, moderate change of diet and exposure to sunlight (and saltwater, if you're lucky enough to have it nearby) will often bring about a "cure" for many of these conditions, although some need more careful management.
My tip: get a referral to a dermatologist and have whatever it is you have properly diagnosed. Don't diagnose yourself off the internet. Medical training involves a six-year course of study, followed by a wealth of on-the-job experience.
Half an hour of googling won't give you an accurate diagnosis.
32 - joseph
I can't comment on the black stuff,it didn't happen
to me.
Topical treatment,cleaning my place,building up my
immune system worked for me. Also shaving my head
helped.I agree on that part.
The derms are just wrong.So don't waste your time.
Dr.Randy Wymore of OK.State will be proven to be
correct.The history of medicine has numerous examples where most doctors were wrong.Dr.Lister was
ridiculed for washing his hands.Recently,Dr.Kilmer
McCully was forced out of Harvard in the 1970's
because of his Homocysteine theory of heart disease.His theory is now widely accepted,but Harvard refuses to acknowledge him as the source
of the theory.
People need to be honest to themselves.Do they
really have the fibers under the skin.Or do they
have some other skin condition.
It is a real disease.I had it and I'm not crazy.
33 - joseph
Are there any film students out there that want to
make a name for themselves by making a good video
that will convince people about M___.
There are already lots of unconvincing videos.
Every shot doesn't have to be extreme closeup.
Time for film students and M.people to meet each other.
I also think people should all ask the Google Foundation to think about funding research.
34 - DJ
Ive been suffering from the disease since 2001 when I worked at a plant nursery in MD. Since then Ive tried everything from Kwell, Lindane,to enzyme cleaner in my bath water. All of these seemed to work temporarily, but it always came back. I dont know how much money and time Ive invested into finding a cure for this disease whatever it is. I have all the symptoms from insomnia from the intense itching,depression, difficulty concentrating and other things. Ive also experienced the dismissive attitudes of many physicians who told me I was delusional as well.
Anyway, I had blood drawn and the dermatologist told me that there was nothing wrong. I wonder if they overlooked the possibility of Lyme Disease.
I will persevere as usual and eventually find out what is wrong. Until then does anyone know of a way to stop the itching? It seems to be worse when Im under a certain type of Halogen light that is prevalent in most buildings.
35 - Ollie C.
I have been compiling information regarding Morgellons Disease to help people find out the facts and theories about this mysterious illness so they can seek the appropriate medical attention the suits their symptoms, whether they truely have Morgellons or some other disnease/infestation. I decided to start this site after learning about the disease and the lack of solid information and research.
36 - JJ from Miami FL
For the past year, my wife's had something very much like Morgellons. She does have those strange fibers. But, the main difference is that she has bugs coming out of her body. By bugs I mean insects and such arthropods.
Like everyone else here we hit our heads against the walls of medical doctors(dermatologists, allergists, infectious disease docs). She was diagnosed with Delusions of Parasitosis. I was diagnosed by our psychiatrist with "folie a deux", because I believe in her delusions.
So, we gave up and started to do research on own own.
We bought a microscope and started taking pictures. I have HUNDREDS (!) of digital photos of the stuff that comes out of her. She has springtails, small basin flies, tiny larva, and tons of other stuff like insect legs, pieces of bug skin, heads, abdomens.... really... I wouldn't have believed it if I hadn't seen it with my own eyes. We have carefully documented the photos and still have some of the actual samples preserved in alcohol.
So, we went back to some of these same doctors and showed them the photos. Now, some of them believe that my wife has a strange parasitic infestation, they just don't know how to treat it. Others, remain skeptical and have as much as accused me of making phony photos on my computer. (You know, it's hard not to punch a guy like that in the face!)
OK, so my wife has bugs. I'm not delusional. You can't photograph delusions.... But, the problem is that my wife is wasting away with this disease. Nobody wants to help her. She's tried every legal medication that's out there. She even tried some stuff from a pet-supply for horses and pigs. She's that desperate. She is in constant pain from the itching and the open lesions. The bugs come out of her on a daily basis. Are they eating up her organs? Are they damaging her brain? She's given up hope.
We're so tired of doctors telling her that she has anxiety disorder. Heck, wouldn't you be just a little anxious if bugs were coming out of you?
So, my post is not just a rant.
We need help.
I'm willing to do whatever it takes to have my wife healed. I'm just running out of places to go. If anyone can help me, now is the time before she becomes just another statistic. I don't want to lose my wife. Thanks.
37 - Morgella
I'm having very good luck with Cipro (generic). This is an antibiotic for Anthrax. She needs to take 1 500mg cap every 12 hours for 60 days. Things will be much better after one week. While taking it avoid, milk, antiacids, nasal sprays, other antibiotics, muscle relaxants, juice, caffeine, excessive sun exposure. Read about Cipro.
If you cannot get it from a doctor (you probably cannot get more than a two week dose), then order it from another country. Look around...you can find it on the web. Generic name for the tablets is ciprofloxacin hydrochloride. You won't be sorry.
38 - Phoenix
I wonder why every account of "Morgellons Disease" I have ever read explains people who bring in the fibers and black pepper-like spots in little baggies to dermatologists, yet no one has thought to not mess with the lesions, and let the stuff happen, and show a dermatologist or doctor? Of course they're not going to believe you if you don't show them it happening! "Describing the same symptoms" No shit, I mean, hello, usually diseases have the same symptoms. But you have to wonder if maybe some of these people are truly fucked, and if the others are making it up? I've never so much as heard of Morgellons until today and it seems like there are never pictures of the actual "fibers" and "spaghetti noodle strands" and "black spots" actually protruding from the skin. I'm still skeptical.
39 - joseph
It's not easy to let it happen when you have it.When
I had it in 93 and 94 there were no examples for me to follow on internet or media. I picked the fibers from under the skin.Seemed like the natural thing to
do-like a splinter or thorn.
It tougher to get dr.app.at same time they are sticking out of skin then you can imagine. It's difficult to do anything at all.I don't know about
brain fog.I did have a tough time sleeping-so that
really made it tough to think at my best.
I was also ashamed to go out in public.I know I cried a lot in my room by myself.
I agree with Phoenix that people who have it now
need to make those videos and pics that are
convincing.You have all the advantages I didn't
have.You should know by now not to bother with
fibers in plastic bags. I took a bag to U.C. Berkeley lab and was told they don't examine bags
of fibers.
I'm skeptic by nature and experience.I'm also open
minded.
The greatest minds said in 1900 that man would never fly.Doctors in 1890's and 1950's discovered
that most ulcers were caused by bacteria.Even when
it was proved in 1982 most doctors refused to believe it.
When Scott Ritter said there were no WMDs in Iraq
all the experts said he was nuts.The majority of
doctors have been wrong numerous times.
40 - Linda
I don't have fibers coming out of my skin, but I do have bugs with red and blue and green fibers attached to them. They then seem to wrap themselves up in these fibers and infest my clothes, furniture or anything else made from fabric. I have what looks like bites on my skin, and I just pray that it doesn't turn into fibers. I have been dealing with this since last November, a year now. It's not lice or scabies because I've been to several Doctors,who think I'm crazy. Like you say, if you take samples they automatically think it's DOP. They have gotten worse this month, about the same time as last year. Is there a site that shows the bugs that is supposed to be causing this? I came across this site while doing a search for insects with fibers.
41 - BrandyTwirl
there is a fantastic treatment that actually works! We have seen most lesion gone in 2 weeks, many people report back symptom-free in a couple of months.
42 - joseph
I moved 5 times in the bay area until I was rid of the fibers. Then moved to boston.I think all the moving and disposing of all my stuff helped me get over it. Nothing is more important than your health.
I also think my immune system and sticking with one
plan instead of constantly changing defenses worked for me.Then again maybe I was just lucky to have it
back in the early 90's. It has no doubt mutated into
something much tougher to deal with now.
I first had something resembling poison oak. Then my feet got really huge. Then the fibers showed up.
I thought at the time that I was bitten by some
bug which I later concluded was a vector for a
worm.And maybe there is some bacteria involved
somehow.
If there is some bacteria or some other x factor,
then the way it seems to start or appear might vary from case to case.
I stayed with pine oil for a really long time.Not a 2 week deal. It may not work for anyone else and
the fda warns against using it.
I don't know what I would do if I had it now.Does anybody have it in N.W.Ohio?
I bet there are lots of ways to treat it.I don't
mean to say it is easy.Several people in this thread seem to be on the right track.
43 - joseph
Has anybody tried making bathwater with alfalfa tablets and laundry detergent? Some people claim it
works. I don't think it could hurt you - as long as
you use good quality alfalfa and are not allergic.
I'm sorry if it doesn't work.Sometimes you just have
to take a shot.
44 - Lorri
I like Joseph above became infected with this in the early 90s. My infection is mainly internal with severe systemic illness and profound Central and Peripheral nervous system involvement. I believe that the generation of organism that I was infected with is not as contagious as the current version. (It is a fact that this organism changes generationally.) I believe that I contracted this during surgery.
I finally put the name to my illness only a couple of months ago. I have suffered for over 11 years with chronic illnesses involving the CNS and autoimmune response always accompanied by mysterious skin lesions that tested negative for bacteria when biopsied. A couple of months ago after my hair started falling out in handfuls and my scalp was covered with itching sores I opened a lesion on my neck that was particularly large and hard. There is no feeling inside these lesions. The small sore on the skin is just the 'tip of the iceberg' so to speak. There was a huge deep grey-black pocket under the surface and inside I pulled out fibers, black debris and hard twisted objects that looked like little pieces of seaweed or little hydra. I have since opened other lesions and found similar material. I was too vain to pick at them before but when they did open I always noticed that they formed an ulcer with a bluish-black center. Now that I finally have a name for this crippling disease I feel quite relieved and vindicated.
I was a six-mile-a-day runner, avid athlete and vegetarian when I became ill. Now, eleven years later I have the vitality of a 60 year old. I am in the late stages now of this infection and I fear that it will be my demise.
I have been in and out of the hospital over and over with scary symptoms that look like stroke, MS, ALS, Lupus, shell fish poisoning, COPD (flat diaphragm with trouble breathing) heart problems (multi-focal atrial tachycardia) and much more. I have been tested for everything and only symptoms could be verified. The cause has never been found...until now. The truth is that this thing is caused by an organism which has been cultured and is being studied in the Netherlands. It does emit a neuro-toxin and this along with the strangling, ever creeping, growth of the fibers causes neurological problems. Long term exposure to this organism causes degenerative neurological disease. This thing does not go away. It has cycles. It is acute, latent and persistent. I don't mean to scare anyone who thinks that they are cured but I have my latent periods when I thought I might be over it too. It doesn't go away. You can see the organism and contact the researcher at: www.silentsuperbug.com. The scariest and most controversial part of this whole thing is: this is believed to be a genetically modified organism, a 'stray target of a proteome research laboratory'. Translation: this thing is man-made. Imagine the implications...imagine the chilling effects on genetic, stem-cell and nano-technology research. It's staggering. Either American doctors are too proud to recognize that the Netherlands is way ahead on this one or it is simply way too much of a political hot potato. (Learn more about the politics of disease by watching the brilliant movie or reading the book: 'The Band Played On') My dermatologist wouldn't even look at the silentsuperbug website. I'm dumping him and going to Mexico for Itraconazol. Go to this website and contact the researcher PerDaniel BellVanEden by registering there. WWW.SILENTSUPERBUG.COM !!!! He has brilliantly provided me with tons of very helpful information about this organism and how to fight it. He is my new hero. You all can do or believe whatever you want but I've found my answer. Keep hammering the CDC and be sure to shake hands with everyone you meet. A cure will not be found until enough rich, high profile people become infected. It will take a few years but this thing is already recognized by the European CDC. It's only a matter of time. I hope I have time... ( =
I welcome your responses and opinions.
Grace and Peace
Lorri in OC
45 - Joe
Morgellons is not a disease per se but a super saturating infestation. Initially it is brought to the sufferer from another person who has an unknown active entity which is visible under a microscope at 300x power. This entity invades almost every porous cloth type material and stays there. It then slowly and steadily penetrates any material that it comes into contact with including human skin. Once this concept is accepted as the situation then removal can be accomplished. There are products which work to do this. People have to be able to do radical changes to their environment. I have done such and have become 99% symptom free. I still am susceptible to external attack from common public environments, such as doctors offices, hospitals, classrooms , etc. where active sufferers give off morgs. But I know how to remove them and return to a non suffering state. The illusion exists when a sufferer thinks the disease is from within only the more severe cases are internalized. In my case it is now a totally exterior attack.
There is no question that this can cause further ailments such as skin infections and psychological trauma. If a person has no idea what is going on and the medical profession doesnt either and the government agencies geared to protect us dont either then hopelessness is a foregone conclusion. Here too there is hope as I have stated above. It is in learning your enemy and applying the correct solutions to solving and removing this dastardly entity
46 - Anne Dill
As scarey as this disease has been I do feel the hardest part has been not having any physician support our quest for good health. Even the ones who felt something was going on would pass us on to yet another road block. I wonder how they spent their holidays? Good thing I didnt have to turn down any holiday parties for I was to busy trying to keep my family in good spirits despite the fact they miss their father who was taken by this disease and they too are ill and no one seems to care. I have seen this affect 4 generations in my family and we too have had all the diagnosis' of Atypical ALS, Lupis Like, Parkinsons, Lewey Body Dementia, ITP, CMT, Frontal and Temporal Dementia, Unknown infections, swelling, fatigue, headaches, the list goes on and on...
The Skin problems are different in everyone and yet the same. This has been the common denomanator that came later in the illness. To be honest, one of the easiest to live with. I have also had the lesions with all the fiberious material surrounding an organism that is in large numbers. I am also pretty sure that if anyone who has seen what I have under the microscope would want to remove it from their body too!! Everyones scalp has been affected with lesions, hair loss, itching, and a waxy coating. Doctors have explained this as stress and subacious cysts that are very common. Funny how we didnt have them before and now children and adults all do.
I think one of my biggest questions is if Physicians tell you that this is out of their relm, and state that they dont have the time or facilities to help, the health departments and CDC make public statements but never follow thru with any of their claims, who is responsible for the fact that my family can no longer participate in school, work, sports, or really any other social event because their bodies no longer keep up their brilliant minds???
How can certain physicians make a public diagnosis when they never have seen you? Is dermatilogist qualified to make a psychological diagnosis? I had neuro-psych give diagnosis that was not depression but frontal and temporal cognitive changes after extensive testing. He also had significiant improvement after treatment with albendazole for parasitic infection. Both physicial and mental improvement but declined after returning home and physician moved and did advise health department and CDC.
We will keep praying and looking for answers, even if it is at a slower pace now.
Anne
47 - Lorri
I know that some want to believe that this disease is just skin deep but for most people living with this infection it is not just in the skin. That is only the beginning. If it helps you to think that then go right ahead but I, like Anne, know better. I think that the mode of transmission has also not been proven. It may vary from person to person and therefore affect their disease process. I'm also unsure that the definition of disease here is properly understood. This DISEASE is caused by a specific pathogen that has been cultured and studied. The treatment protocol for a cure is not yet known. However, I can pass on this information: Per Daniel Bell VanEeden, a researcher in the Netherlands who studies this organism, recommends Itraconazol along with other antibiotics to control its growth. He also recommends intermittent whole body washing with Selsun Shampoo to keep the growth down on the skin. This organism’s base is a cyanobacterium fused with a trypanosome (parasitic) element with multiple genetic expressions. It also has fungal properties thus, the Itraconazol. I recommend that sufferers go directly to the researcher for information and advice as you will be dealing with a very educated and brilliant man who has been studying this organism for years. He was very kind in dispensing information to me when I contacted him. He is very kind and very knowledgeable. Do yourself a favor and send him a brief, non-hysterical email and he will respond with lots of information. Remember that he is our champion and is on our side. Treat him with the utmost respect, please. His advice will be 1000 times more accurate and valuable than anything else you will find posted on a message board. Contact him be registering at his website: WWW.SILENTSUPERBUG.COM
Grace & Peace.
48 - joseph
Entomologist Richard Fagerlund is collecting samples
of fibers and bugs.He can be easily found on the
internet.He wants to prove it one way or another.
49 - Smileykins
It says, here,
"Add your comment, speak your mind".
Y'all sure do. Your minds need serious help.
50 - joseph
Smileykins/Kristi why can't you be nice to people.If
all the people on this site have mental problems then please be kind. Maybe we should go back on our meds. I understand they give them to people with
general anxiety disorder.
I've been to shrinks.They all say I'm o.k.
I'm a healthcare worker now.
I deal with people who have mental problems.I have to be nice.
51 - RD
For those who have not found doctors who will give them antibiotics etc. give this regimen a 10 day to two week try.(it is fairly expensive so if it doesn't work give it up) You will need:10 one lb. boxes of baking soda (I have found it for .50 cents a box at a dollar store); one bottle of light body oil (K-Mart has a Neutrogena like one[American Fare] for half the price of Neutrogena about .50 cents /oz); a one oz. bottle of Tea tree oil (Walgreens has an occassional two for one sale of this [SunDown]which makes it about $5.00/oz: one bottle of medicated calamine lotion (Top Care is one store brand which is cheaper); and medicated selsun blue shampoo (Walgreens just had a sale on a Walgreens' brand of this type of shampoo for $3.00 a bottle). Method: Choose a time of day when you can have the bathtub for about an hour. Mix the tea tree oil in a plastic bottle with the light body oil. Put several dry washcloths beside the tub and a paper towel also. Pour one package of the baking soda in the tub with several inches of hot water and get in the tub. After you are in the tub add one oz of the oil mixture (this will make the tub very slippery so use great care when getting out of tub-put dry washclothes on the side to grip the tub if you don't have grab bars as your hands will be slippery and wash the tub carefully after you get out to remove the oil) and continue to fill the tub. Immediately, start pouring the tub water over your head to get your hair wet and then use a clear mild shampoo to make a good suds down to the scalp and leave the suds on the head til the end of the bath. Sink back in the tub and enjoy a good soak. If a finger goes to a scab wipe it off with the paper towel as I believe these little critters can survive in water. Rinse the hair off with the bath water and towel dry and then when completely dry rub calamine lotion in all the areas which have active lesions. If your bath is in the morning rub calamine lotion on again at night without the bath or vice versa. Do this several days in a row and then skip the bath and take a shower using the selsun blue as both a shampoo and a body wash and again follow with calamine lotion. Then start over the next day with the bath. You should have enough oil for 9 baths and this should be enough time to see if you are improving-if not, it is not worth the time and expense to continue. Either way, if you should choose to try this regimen let this board know whether or not it was successful. Use your head-use all products as directed and if you notice a worsening or irritation drop the treatment immediately. Use care with the bath oil and use clean clothes and towels and keep all combs and brushes clean and think positive thoughts. Good luck.
52 - Smileykins
Joseph. Is it all right if I refer to you as Joseph No. 2, since there's apparently another Joseph posting too? I don't see anyone posting under the name, Kristi, and, excuse me, but I don't understand the reprimand. I am nice to people. If you've been to shrinks and they all tell you that you're o.k., (although I don't know why it was necessary to tell me that), then, you're faring better than much of society, including me. So, since you've referenced that you're a healthcare worker, now, and that you deal with mental patients, can you speak for the ones who say they have "morgellons disease", and tell me what they want? They've made the world know that they're proud to exercise their right to not treat their mental condition(s), making us acutely aware of the severity, in explicit detail, and, honestly, Joseph No. 2, it defies ALL laws of nature that they've forced the government to take control. Anytime we invite them into making decisions for us that we can make on our own free will. Oh, Joseph, can you tell me what they want?
53 - joseph
Smileykins I'm sorry if I confused you with someone
posting on another site named smileykins/kristi that
said she was stopping her meds for g.a.d. We all make mistakes.Is there another Joseph here?If there
is---Hey J.
You don't seem very nice.You say everyone posting
needs serious mental help.You must be a mind reader
with perfect judgement.You've never examined the bodies of all these people.So how do you know?
I might be confusing you with some other people.A
couple with past problems that now pass judgement on
people with morgellons.
What are these laws of nature that people are going against when they demand the govt.do their
job?
Why are you asking me what these people want?
You should already know- since you know how their
minds work. How their bodies work.
I'm telling you I'm o.k. because you said everyone here needs mental help.Why should anyone resent
your all knowing judgements.
54 - Smileykins
Hi, Joseph. I'd noticed a previous "Joseph" that had posted, who believes in "morgellons disease". I think he said he'd once had it. Since you're a healthcare worker who deals with mental patients, that was why I asked you what these patients want to accomplish through forcing the government's involvement. Thank you.
55 - joseph
I had morgellons disease.Dermatologists sent me to
Psychiatrists.They said I was not like crazy people
they see.They thought I had a skin problem.Back to derms who repeated that I was crazy.
I cured myself.
I don't expect anything from the govt.-I don't trust
the govt.
I want to thank the people that convinced the c.d.c.
to start the investigation starting up in l.a.
I want to thank sen. di.fi.-never expected to be saying that.
People want their suffering to stop.They want
answers.
I'm hoping for the best from c.d.c. and expecting
the worst.
Can't say much about my clients.I do give meds.
A necessary evil in a lot of cases.If people don't
need it,that is really the best.People who really
have m. don't need it.
gators rule- ann arbor the town and kfjc d.j. rule
Norcal rules-TX. is cool.
No winter yet in OH.-my husky is missing snow.
56 - Smileykins
Hello, Joseph. Do you think there are very many "morgellons" sufferers who have the capacity to understand that taking medication, on their own accord, is preferable to being forced into treatment, someday, under the viable possibility of their movement creating new mental health legislation? Thank you.
57 - joseph
Sorry- I didn't mean morgellon sufferers taking any meds or anything else they don't want.I'm a history buff,so I'm aware of all the things that have been forced on american citizens in the past.I hope that won't be the case ever again.
I just read about the c.d.c. branch dealing with unexplained deaths.They can only solve about 15% of the cases they take on.Who knows if the morgellons crew that they have put together are even that good. It took some bike mechanics from OH. to discover flight. I'm not counting on the usual suspects to solve m.
58 - Smileykins
But Joseph, the reality of the situation is that patients refused to treat, after they were repeatedly diagnosed. Due to their varied states of psychosis, and associated skin problems, they continue to join up to this shared belief that they have something other than what they'd been told.
The CDC repeated, in letters to everyone, to see their local healthcare providers if they needed treatment. Morgie patients, for the most part, ignored that, saying they already had, and they knew what to expect.
I firmly believe the main reason the CDC reacted, was not due to Senator Feinstein's letter, but due to the media coverage on "morgellons disease" last year. The stories were responsible for alerting the public to an unnecessary fear, and the CDC had to do something.
I realize that many of these people profess to despise, and some live in fear of, the government, and for that very reason (as well as, so many others), their "morgellons disease movement" defies the very laws of nature. When we want to live in a free society, we don't invite, let alone, force, the government to step into our affairs.
Since you're in the mental heath field, you know the history, and that this is likely to result in a step back, albeit a slow and tedious process for our nations' lawmakers. People like this should demand help, and this section of society has been under served since the reform movement, but I don't think they fully understand the ramifications of their actions.
It's very tragic that this all came about, with so many horrible consquences occurring in these patients' lives, when all it required was someone trusting the advice of their doctor, in the first place. So, that is what I meant by my question, "Do you think there are very many 'morgellons' sufferers who have the capacity to understand that taking medication, on their own accord, is preferable to being forced into treatment, someday, under the viable possibility of their movement creating new mental health legislation?". Thank you.
59 - Smileykins
Watch The Dr. Phil Show on Thursday, January 25th, to see a woman with "morgellons disease" concerns. I'm not certain whether her appearance is due to believing that she has it, or whether she is in need of reassurance that she doesn't.
60 - texasmorgie
Smileykins is a disinfo agent. He/she is from the Morgellonswatch website and spends every waking moment trying to discredit people with this disease. One has to wonder why anyone would be so interested in Morgellons if they don't have it themselves. Why, I doubt most Morgies have put as much time and energy into researching this disease as Smileykins has trying to tell us we're all delusional.
61 - Maggieagain
I've been reading with much interest... do not listen to the cheap disinformation from God knows what agency(s) - these people spend every waking minute tracking people posting about this disease to discredit... just these two in particular... isn't that a bit weird to you? Go to www.rense.com.... listen to the audio tape # 6, Dr. Stanigar and Dr. Karjoo have found chimera that are some type of genetically engineered bacteria w/multiple species dna, as well as nanoprobes... we might even be dealing with the initial stages of a pandemic as we speak... possibly "targeted" humans?
You have to know that there is some serious trouble in the air when all the government agencies go to such lengths to NOT look... from the beginning all the doctors internationally prescribed Orap and gave a DOP diagnosis... that fact alone is too coincidental... babies, dogs, horses, get it... they don't conjur delusions. It is reported on 6 continents.
There are a small number of "research" forums which are exactly that... and... a few "disinformation" forums that venomously try to promote the DOP propoganda... toooooo venomously... CDC won't do anything but stall even though they claimed to be investigating... as well as other research labs... stalling... stalling... wonder why..?
This is a coverup in the highest magnitude.
Biofilm bacteria settles in a host, future bacteria can find the host with biosensors similar to how pheromones work... especially if the chimeric bacteria uses the sensor portions of a myriad of species - Check out John W. Martin's papers on stealth virus and see how it's done... - just switch the inserted virus in the bacteria and bang!!!! bird flu and a large infected group around the world fly away... just theories.
The stuff about the multispecies chimera is accurate... any lab student can purchase varieties of them for research purposes. Just gotta wonder, they won't talk about chemtrails and they won't talk about the polymer filaments being manufactured in these peoples' bodies... why is that?
The infected also report of "tones" they can hear... like sonar and at higher and lower pitches... hummmmmm... And what do the infected people have in common.... maybe not genetics as much as...political or moral views? Why not?
Just thinken bout' things....
62 - Smileykins
#60 â€" January 22, 2007 @ 17:46PM â€" texasmorgie
Smileykins is a disinfo agent. He/she is from the Morgellonswatch website and spends every waking moment trying to discredit people with this disease. One has to wonder why anyone would be so interested in Morgellons if they don't have it themselves. Why, I doubt most Morgies have put as much time and energy into researching this disease as Smileykins has trying to tell us we're all delusional.
__________________________________________________
#61 â€" January 23, 2007 @ 02:40AM â€" Maggieagain
I've been reading with much interest... do not listen to the cheap disinformation from God knows what agency(s) - these people spend every waking minute tracking people posting about this disease to discredit... just these two in particular... isn't that a bit weird to you?
__________________________________________________
Enlighten me, and everyone reading here, with how I know you, and when there has been anytime that I've made a personal attack on you. I don't appreciate this, but I need you to be specific, and honest. What has warranted these exaggerated lies about me?
I don't doubt that you're ill, and that you need serious help. You need to try understanding that the freedom of several people expressing their opinions, is in no way capable of detracting from, or diminishing, in any way, an actual infectious disease, though, and it is not deterring the undertakings of the CDC.
Don't wonder about me, and tell lies. Ask me anything you want to know. Go to my blog to vent, and say anything that you wish. Any person who thinks they have morgellons disease has yet to do that. They take pleasure in lying about me, just like you have, in public forums, like this.
Excerpts from the comments' section on my blog, made by me, Smileykins, someone who'd had DOP for two months, five years ago:
"I could have quite possibly thought I had to give up and just lay there and die from a deadly disease...one that does not even exist. Seriously, imagine that!!! And people wonder why I'm so pissed?"
"How many have died, just the way I could have, if I had heard of it back then, and believed all the damned hype at a time when I was vulnerable?"
Excerpt from a viewer of my blog:
"After a long night of internet research on my symptoms (most of which had to do with morgellons), finally, I came across "It All Started With A Young Boy Named Drew". I've suffered from these symptoms for over a year now. Up until a couple months ago, I've lived in a secret hell, afraid and embarrassed to tell anyone of my bizarre symptoms and rituals to manage them."
"It was the story of Smileykins that finally gave me some comfort. Out of all the blog battles, doctor and scientist reports, and everything else i read on the internet relating to the symptoms, your story was about the only thing that offered me an explanation that made sense."
You should be ashamed. You don't know me, and I have done absolutely nothing to you.
63 - tallcotton
I know Smileykins in a close personal way, and I know that she is an honest person. She's retired on a disability, and she works for no one. She does have a lot of time to spend on her computer, and she has done extensive research on the topic of Morgellons. I know of no one else as knowledgeable on the topic as she is. She is certainly no agent for anyone. She is very compassionate and cares very much for the health and well being of everyone. She's also very concerned for the health and well being of everyone's pets. She's extremely intelligent, and she knows exactly what she's talking about. You believe what you want, but there is no Morgellons. People who think they have Morgellons have a wide variety of physical and mental disorders. The most common of disorder which the "Morgies" share is Delusions of Parasitosis (DOP). Most of the registrants at the Morgellons Research Foundation have each received that diagnosis from 10 to 40 times. There's no evidence that Morgellons is a distinct disease or anything new. But there's certainly a lot of evidence to the contrary. There's also a lot of evidence that the Morgies are suffering from mental problems. It's no disgrace, and that shouldn't considered to be an insult. The brain is an important organ, but it is just an organ, and its chemistry can, and often does, get out of balance. It can be adjusted, but that's very difficult when the patient refuses the needed medication. With the media blitz, DOP has come out of the closet and gone mainstream. The government got involved because of growing hysteria. They have know for several years that Morgellons is DOP.
64 - joe
By the way, when I wrote last month I forgot to mention that your pc spits out morg dust which becomes morgs which attack us. More insult to injury. You can get healed by removing your cloth type materials and/or washing them in various cleaning agents. Cloth holds them near to us and they attack from this location. Older rugs are also morg locations.
65 - texasmorgie
What about kids and babies infected, not to mention pets? I suppose they're all delusional, too.
66 - Smileykins
They need protected from people who refuse to treat mental illness.
67 - Smileykins
Listen, I wasn't meaning to be a smart ass. Far from it. But, you asked a question that deserves an honest answer. I know all about the people who think they have this, who are psychologically damaging their children, some even picking at them, too, as well as not seeking medical attention out of fear that their children will be taken away from them. That is clear cut child abuse and neglect. How would any of you have felt, when you were children, to have parents behaving in such ways as "this disease" causes you to? Many also talk about animal abuse in allowing their pets to be neglected to the point of death. They say they "died of morgellons disease". I read it nearly every day on the message boards.
68 - Smileykins
I mean, I read that "kids, babies, and pets" have this. I'd thought that one of my dogs had caught a new deadly disease from me, too, when I was DOP five years ago. I took care of him, though, and he recovered before I did.
69 - texasmorgie
Smileykins, go get a real job. Why are you so interested in trying to discredit people with Morgellons? It seems to a full-time job for you. Do you have some sort of axe to grind? It's likely you're being paid to spout this nonsense by whoever unleashed this on the population (whether on purpose or acidentally). I live in Texas, I work with the public, and I can tell you that I see thsese lesions on just about every person. I think you're the one who's mentally ill. [Personal attack deleted]
70 - Smileykins
texasmorgie, you know that you lied about me, here. I don't know who you are, but know that I have never done anything to justify such actions. Stop being so childish, and messing things up here, since you have an issue with me, and take it to the below link. You could have clicked onto the "URL" next to my name, anytime.
I await the opportunity to talk this out like civilized adults.
71 - Smileykins
Ryan Webster, Eric Olsen, and others, I apologize.
72 - Janet Fedeles
I am a Morgellons sufferer. When I was first diagnosed, I could not get help from anyone, including the doctor who diagnosed me (I had never heard of Morgellons). By the grace of God, I found a website that offered some hope. The director of this site is a sufferer and has spent over two years researching the disease. When I contacted the director, via his website, he actually called me in the U.S. from his home in Germany. He spent hours on the phone with me; giving me needed information and support. The cream he produces, called DSP, is magic, in my opinion. It not only soothes but it also kills the parasites on and under the skin. Finally, I had relief, after months of agony, and I could function again. This man has a big and tender heart for all Morgellons sufferers. Something severly lacking among the medical professionals and others, like smileykins, who have no idea how horrendous this disease is to live with. I have no idea what you are talking about regarding Morgellon sufferers not agreeing to treatment. But I say, if anyone wants to give me a "pill" to rule out delusions, bring it on! I wish this was delusional. It is bizarre and alien and difficult to understand if one does not have it. But it is very, very real. My home is open to anyone who wants to spend a short time seeing for yourself. It will only take a couple of hours for you to see the fibers and the many other bizarre happenings we report. Then you can talk! But for all you sufferers, I do hope you contact the website: Morgellons Research. You will get a lot of information and kind, personal support from this site and the DSP cream is fabulous.
Fidelity
73 - BBJ
My very wonderful angel friend in Atlanta has Morgellons Disease. I do not. She has been a dedicated nurse for years and years, and the one thing I know for certain is that she is so NOT delusinal.She has been focused and determined for the past year, and I fear she is losing her will to fight the battle of clean-up before using anything(sink,shower,toilet)and then to clean up after each use.She is tired,and I cry for her daily. This is a hideous disease, and research shows that our government KNOWS ALL TOO WELL about it. When Morgellons becomes another AIDS (which is a test tube disease also)then; the Drug companies will have enough people infected to make a buck with a new drug, the lobbyists get their share of the money by bribing the Politicians to secretly stick it in some Bill on Capital Hillto benefit the Drug companies, and you, all the sufferers, your kids, loved ones, pets will pay through the nose to get it. Everyone needs to make a lot of noise about this disease. Write and call your congressman, senators,make and post videos to myspace on-line, tell Oprah! This disease is going to be inherited by our kids, our future if we don't stop it. My friend is not crazy, this is a real urgency. If we the people take back our power, we can make doctors, reseachers, government listen.They spend billons going to the moon. We need them to spend that money on the citizens and taxpayers of this country fighting real hardships. We deserve that much for our years of paying taxes and sending our families to die in other countries. My friend deserves a cure. What do your kids deserve?
74 - Smileykins
Janet Fedeles, I don't know you and you don't know me. If you have the false belief that I have done something to you, take any problems you have with me here...
Smileykins
75 - tallcotton
Janet Fedeles,
No one has said that your illness isn't real. Delusional means that your beliefs about what you are experiencing are unshakable, but not based on the evidence. All Morgellons believers are delusional. I don't care who they are. Now, you talk about Smileykins, but there's no other person in this world that knows as much about Morgellons as she does. She has suffered more than you could ever imagine. Until you learn the facts, you need to quit spouting off.
Tall Cotton