An example would be proper female care. Women that are wheelchair bound and cannot be transferred without aid of a Hoyer lift cannot receive pap smears in a traditional doctor’s office. This is because doctors do not have Hoyer lifts. These women go without exams and many of them die from conditions that possibly could have been prevented. This would be something you would think would be offered, especially due to the severity of the issue. However, these things are not offered.
Alliances with hospitals and doctors offices to supply them with Hoyer lifts so that patients do not need to bring their own and so that doctors can adequately treat patients would be a good idea, but again this is something not offered. If you want special treatment, you need to go to the MDA clinic and if the MDA clinic does not offer what you need then you do not deserve to have it.
Even properly training health care professionals on how to help and care for the specific needs of the disabled community would be money well spent, but again, its money not spent at all.
MDA Summer Camp
MDA offers Summer Camp for children with Muscular Dystrophy. Originally, this summer camp was available for all people with Muscular Dystrophy. Eventually, this was changed to only allow children the chance to go to summer camp though this information is not readily available on their website. I had to hunt to find this out.
Summer Camp is an excellent thing because it gives children with Muscular Dystrophy the chance to spend time with others that understand their needs. Ultimately, for one week out of their year, these children do not have to worry about the fact that they are treated differently.
When adults were allowed to go to Summer Camp, children with Muscular Dystrophy were able to have a better sense of hope because they could see that life did not end at 21. It meant that they could lead fulfilling lives, just like everyone else. In essence, it gave them a mentor.
Dominick talks fondly of summer camp, and some of his best memories include a very understanding man named Jack. At one point, the scooter bound Jack saw a very tired six-year-old Dominick and gave him a ride back to his cabin so he did not have to struggle to walk across the camp. Knowing the big camp was too much to navigate, Jack made sure to come back and pick Dominick up to take him the long distance from his cabin to the community pool and dining hall each day.