The MDA never mentioned the problems in their reply. They only said that it had come to their attention that Dominick needed help and they hoped the new wheelchair would do him good. In some ways, it has helped, but unfortunately, the help came too late and there is more damage to repair to his body. And that needs to be done before he's the active, out and about Dominick I first met all those years ago.
Today, Dominick no longer attends the MDA clinic. Instead, he gets referrals for specialists through his primary care physician. Dominick is incredibly vocal about his needs. He is asthmatic and makes sure that it is taken care of regularly. He had spinal fusion surgery so he sees an orthopedist to check on the rods in his back and mold his AFOs (plastic foot braces).
At this point, we are more happy, healthy, and have a goal of one day starting our own organization with the goal of actually helping those in need. Until then, we can only continue to spread the message of hope as we let people know that people with MD or any type of disability can do what they put their minds to, and have a very fulfilling future if they give themselves the chance.