Disabled people can accomplish whatever they set as their goal in life. Unfortunately, the MDA does not see this.
The conclusion, of a three part series on the Muscular Dystrophy Association (MDA), Jerry Lewis, and his Labor Day Telethon ends with some final thoughts on the MDA and some personal experiences I have had with them as the caretaker of my longtime boyfriend, Dominick.…
Article comments
26 - Dominick Evans
In response to the questions I missed...
1. 100% of the profits will go to serving those with MD. If we do ever end up with paid employees we can apply for grants to pay those employees rather than dipping in our "helping people honey pot".
2. We actually have the website covered. All space and maintenance has been donated free of charge for as long as our organization is up (and we aren't going anywhere). Additionally, the website design has been completed. Our host is one of the top paying web servers so we don't have to worry about a free "with banners" type setting.
In my day job I work with Linux web servers so I know quite a bit about how all of that works.
3. Ashtyn studied Criminal Justice in college so I am sure we won't have the same problems that MDA has wih supposed "false accusations" since she knows what it takes to stay within the law.
MDA's response is to attack the physical or "mental" well being. Jerry's response is "they're all a bunch of cripples in wheelchairs, half-people, who can't be believed because of it".
I find that when you answer "false claims" with intelligent responses you avoid the need for lawyers. Unlike MDA, I have nothing to hide. When we start making money, we'll be keeping meticulous records so that if any questions arise...we can present our books. I have no reason not to be 100% honest about how my non-profit is run.
Also, I have some connections through the volunteer circuit that can help with pro-bono lawyers if the need arises.
Hope this answers your questions :)
Dominick
27 - speaking the truth
Its been fun, But I really don't see the point in writing here anymore. Your responses are unrealistic and idealistic in nature. Good luck on your cause, But I highly doubt that you will reach an effective size to help all the people you were talking about. Do you have an advisory board yet? Do you know what an Advisory board is?? you don't have to answer that, because i am wont be reading here anymore.
Well, this is my last post, I hope the people will have fun reading this long standing debate as I did. In my opinion I am the victor, But I am sure Dominick and Ashtyn will beg to differ.
Enjoy,
Speaking the Truth.....
28 - joshua 26
As one who currently suffers from DMD, I understand your frustrations. I used to appear on the local telethone in Alabama every year, but discovered that there was not much they really did to help us. Medicaid has done more for me than MDA. I currently live in Texas and I have not seen a representitive in three years. I have also decided that instead of becoming bitter, I would become better by trusting God to do right with everything he has allowed to come into my life. I am currently in Bible college and working with kids at church. There is no reason that anyone cannot do anything they desire to do. Dominick, what is your relationship with Jesus? Here is part of my life story www.totallyteenministries.org click on my life.