With so much still unknown, it's difficult for folks to get a diagnosis right off the bat. Having been through this myself, it took a doctor reading through old notes in my medical chart (after reading an article on Morgellons last year) to be convinced that this is what I'd experienced.

Through an unrelated illness, I'd been on a wide range of extremely strong antibiotics several years ago and I haven't had a recurrence of the odd fibers, rashes, lesions, around scar tissue since. Call it coincidence or call it a cure, I don't care. It's gone and I'm glad. I only wish my doctors over the years had known what they were looking at so we could have come to a treatment plan sooner.

You have to consider the Money aspect, and that fibers are everywhere, which explains the objects emerging from lesions

I read that the only effective treatment against this dread disease is antibiotics, and oftentimes even that doesn't work...

Not good...

But I'm glad you are feeling better now, Joan! :)

This strange parasitic infection that is being called Morgellons Disease is most certainly not isolated to Texas, California, and Florida but cases can be found in every state of this country. Most times patients are being diagnosed as delusional because doctors do not bother to examine the evidence and assume that the very act of bringing in samples of any kind are a symptom of delusional parasitosis. This struck in my home, infected my entire family including a two month old infant. We all experienced the sensation of tiny insects crawling on us whenever we sat on infested furniture and broke out in rashes and had track marks. Once after washing a load of infested clothing, I actually found tiny eggs in the strainer of the washer, which my husband also saw. Our hair became rough, seemed to move on its own, and fell out in patches. My children and I had strange hairs come out of us rectally. My small son actually got several red spots inside his hands, a rash on his knuckles, and two dime size white spots on his wrists from simply rubbing lotion on the bumps which were on my back. We took no antibiotics, but religious washing of bedding, removal of carpeting, and throwing out infested furniture resolved the problem for us. During the worst of it we actually had tiny things like splinters popping out of our skin. Sure the symptoms are unheard of and rather strange, but this is a true parasitic infection that the medical community needs to take seriously. Even if it were a mental problem, antipsychotic drugs do not work in curing the problem. Oddly enough sufferers have found that the same types of products are helpful in fighting this so called delusional. This problem needs to be taken seriously by the medical community. People are commiting suicide because they are not receiving help from those they trust to know what to do. Here's a big question that I have for medical proffesionals...what makes a person with no history of mental illness suddenly have the sensation that they are being bitten, break out in rashes, sores, and track marks, and actually produce strange objects from their skin. Lastly, we did actually find two springtails in two different forms during our infestation. Springtails have actually been connected to many, many morgellons cases although springtail researchers refuse to believe that they can infect people.

Hi, My name is Jack. I've suffered from this very same symptons for over ten years!! I've been to the E.R. at several different hospitals. Every time I go, it's to no evail. They don't know what to say to me!! I just saw the news and it finally put a name to the madness!!I really want to get checked out by someone who will listen with an open mind and believe what Im telling them!!! I feel my skin crawl, I get the horribly painful sores, I even experience the thread like things comming out of my skin!! One thing I have not heard a mention of is the hair fibers or the actual hair folicles if pulled out of my skin have a strang looking base on them and they will like attach themselves to anything and it's very strange!!! If anyone could tell me of a doctor located in mcminnville, or pordtland or salem or anywhere half way close to me I would really appreciate it!!!! thanks to who ever opened this page!!!!

this is to jack. I have a friend who has been complaining of the same things your describing. Of course no one can see it but her. have you found a doctor yet? she is in the salem area.

I have to say that I was so shocked to see this on the news in my area last night. I have been suffering from this for a few years now. I thought that I just had some weird genetic skin thing that my family passed down. I was always way too embarrassed to tell anyone. I think (after reading several articles online this morning) that I may not have as serious a case as I saw on the news. My fibers are not red or blue...but white only and there is a black speck on the top...if I scratch one it raises above the skin and if I pull it out its like several cottony fibers....so weird. I also have a lesion on the back of my neck that will not heal. I am anxious to hear from other people who have experienced this. I guess i had diagnosed myself as crazy before a doctor could "misdiagnose" me.

My sister has had these weird things coming out of her skin, she is losing her hair. Her feet swell. She showers and it gets worse. She had a spegetti noodle like thing come out of her heel. I just can't beleive this is happening and no one is helping these people. Her doctors have been saying shes crazy, delusional, a drug addict, etc..Are these things contagious we need to know? I don't want it. Is my sister o.k. to be around? HELP!

if treated early it is easier to heal.
a dermatologist is the first dr. to go to and have a test done for lyme disease. a university medical center is probably best. since they have the multiple resources avaiable. this began when troops returned from iraq and middle east area, it then spread when they went home. some doctors are more familiar with it now. since the news coverage.

My hubby returned from way S. where he is working on rebuilding roads. He was a mess.. In pops my sister & she cured him. ( this is the short verson.)Read her website: posted below. Seems these things she used mildly shocks the body & shocks the bugs, ETC. what every theyre. Used my email to let me kmow how turns out if u have this conditions. I sure hope I am not going get from him. BUGS!!!!Wish was someway to give u her address.

I just posted. I want all replys email to me

I had the exact symptoms of Morgellons disease.My doctor prescribed Hydroxyzine HCL 10MG. and Clobetasol Propionate ointment 0.05% The symptoms of itching and burning disappeared in 10 days.

Why do you give ignorant doctors a free pass on this?

Everything seemed fine when I first went through the transporter. Then a few days later I found these dark black hairs on my back.

Could this be some type of weird tropical plant the Mexicans are bringing in? The stuff looks like roots.

this is for #7, tracy. what she is discribing are blackheads. they can appear anywhere on your body. soap and water is a sure "cure".

HI I have had Morgellons for 1 years now - I feel for all you sufferers out their because it is the most horrific thing out there and we do not get the support from our loved ones as we should.I have tried everything that the www.Morgellons web site saids and much much more and nothing seems to work to get rid of these strange bugs and fibers. We need one on one help from our doctors, but I dont know about you all out there but my doctor didnt want anything to do with me- (there should be a law against that)
I just wanted to make one more commet about Morgellons that I personally think is wrong with the people out there that think this Morgellons is contagious- Well I have been around many many people and not one person has gotten this from me- Im not a doctor but (in my opinion) you get this Morgellons from that main source- the same way that I would have contracted this is the only way that abother can contract it. I know where I get my Morgellons from, If the doctors out there would just listen hear and research it the world would know more about this and be able to figure out a cure.I have researched my own Morgellons and I have found out lots- But seriously it doesnt mean one thing without help from a specailist.
One more commet to other Morgellons sufferers try to think about people not beleiving you about your Morgellons life will be much easier- You know your body and you know that you have it-
the people thatdont beleive you I see it as IT'S THERE PROBLEM! The day will come soon when the world will know the truth and they will know the whole truth, then after that day we can all breath a little better and minds will think straighter and will all be ok. Have Faith
Mary from SO-CAL
Mary

30 of 31 Morgellons patients tested positive for Lyme borreliosis.

Many doctors instantly diagnose using Ekbom's old 1938 unproven theory Delusions of Parasitosis the moment they hear the unusual symptoms. Thus, the patient is labeled DOP and is not given any treatment, allowing their disease to progress unchecked and unrelieved.

However, DOP is a diagnosis of exclusion if protocol is followed. Bloodwork, skin scrapings, or other lab work to rule out parasites or systemic disease should be done before diagnosing DOP. Examination using magnifying glass or microscope should be done.

With the lack of treatment from a majority of doctors, the lack of attention by local health departments, and the lack of action to-date from the CDC (who says they are forming a "task force" to "study" this "syndrome") the actual size of this disease in the population is unknown.

Here's an example of the typical attitude from an MD who is a member of the Something Awful message board:

Invicta{HOG}, M.D. "Well, it's not an actual hoax, but it is largely psychiatric in origin. I have seen patients who suffer from this and they all believe it quite strongly. They are quite tough to treat. They bring in all these little threads and things as proof.

The worst thing here is the reporting in that article. You'd have to look pretty hard to find a doctor that's "confused" about this disease . . ."

From NP Ginger Savely:

" . . . I now have 31 patients who fit the criteria for Morgellons disease. These patients have come to me from all over Texas, desperate for answers. I continue to be impressed with the consistency of their stories. All but one of these patients have tested positive for Lyme borreliosis, so I am currently treating them with antibiotics and seeing some remission in Morgellons symptoms . . ."

From: http://nurse-practitioners.advanceweb.com/
common/EditorialSearch/AViewer.aspx?AN=NP_05may1_npp16.
html&AD=05-01-2005

The article ends with this statement:

"Rather than being quick to pigeonhole these patients into a psychiatric diagnosis, we owe it to them to thoroughly investigate the cause of their symptoms. Morgellons disease is a reminder that we have much to learn by really listening to the patient."

And, again from Ginger Savely:

" . . . The two main occupational groups reporting symptoms of Morgellons disease are nurses and teachers. Nurses outnumber teachers 3 to 1, but both occupational groups represent a significant percentage of patients with this disease. It is unclear what the risk factors might be, but researchers are exploring the possibility of casual transmission. . ."

30 of 31 Morgellons patients tested positive for Lyme borreliosis.

The best labs to use to check for Lyme disease are Igenex and Bowen.
============

"Borrelia (Borreliosis, neuroborreliosis; also known as Lyme Disease)

Spread primarily though the bite of infected ticks that live on a wide range of mammalian species; secondary human-to-human transmission through semen, breast milk, and possibly in utero."

LYME DISEASE SYMPTOMS BY PATHOGEN:

from:
http://www.geocities.com/playpub/LD-Symptoms.htm#_Toc119818341

". . . Borrelia

Bladder dysfunction, Burning or stabbing sensations, Cardiac impairment, Change in bowel function, Chest pain, Confusion, Depression, Difficulty thinking, Difficulty with concentration and reading, Difficulty with speech, writing, Difficulty finding words; name blocking, Disorientation: getting lost, going to wrong places, Disturbed sleep: too much, too little, fractionated, early awakening, Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity, Exaggerated symptoms or worse hangover from alcohol, Eyes/Vision: double, blurry, increased floaters, light sensitivity, Facial paralysis (Bell's palsy), Fatigue, tiredness, poor stamina, Forgetfulness, Headache, Heart block, Heart murmur, Heart palpitations, Heart valve prolapse, Increased motion sickness, Irritability, Irritable bladder, Joint pain or swelling, Lightheadedness, Mood swings, Muscle pain or cramps, Neck creaks & cracks, Neck stiffness, pain, Numbness, Pelvic pain, Poor attention, Poor balance, Poor short-term memory, Problem absorbing new information, Pulse skips, Rib soreness, Sexual dysfunction or loss of libido, Shooting pains, Shortness of breath; cough, Skin hypersensitivity, Sore throat, Stiffness of the joints or back, Swollen glands, Testicular pain, Tingling , Tremor, Twitching of the face or other muscles, Unavoidable need to sit or lay down, Unexplained breast pain, Unexplained fevers, sweats, chills or flushing, Unexplained hair loss, Unexplained menstrual irregularity', Unexplained milk production, Unexplained weight loss or gain, Upset Stomach or abdominal pain, Vertigo, Wooziness. . . "

30 of 31 Morgellons patients tested positive for Lyme borreliosis

Please leave the diagnosis of mental illness in the hands of those clinical psycholigists trained to use a battery of psychological tests. We look at indices for neurological impairment and integrate findings from objective and projective measures to give a balanced and full clinical picture.

Can dermatologists just work on doing good dermatology and remain cognizant of practice boundaries? Thank you.

"Who" though, with "morgellons disease" is willing to get a mental evaluation to begin with? Dermatologists, and other doctors, and even discerning people that hear the news, and read what they do on morgellons message boards are not stupid. I invite persons in possession of excellent comprehensive skills to visit the URL I've provided.

Some "morgie people" are orchestrating a letter writing campaign, even now that they their wish has finally been granted that the CDC get involved, as well as Wymore's getting the go ahead with his OSU studies to begin next month.

They're planning on sending out letters to public schools to spread panic. So, why is that, after their wishes have now been granted? That serves to add to the opinions the general public has already formed.

I think I may have Morgellons or something similar.Almost a year ago my legs began to itch very severely.The itching was all over my legs but more severe on my shins.I tried changing soaps , detergent,lotions, I even tried eleminating different types of fabrics (socks and pants etc.)But nothing would help.I would end up with sores all over my legs and it was just gross looking.Anyway I had to force myself to not scratch my legs for fear of infection and I also found that Ojon ( a restorative hair treatment from the jungles of South America)would actually give me temporary relief.
Anyway I just got used to my legs itching and would still catch myself scratching occasionally when I wasn't thinking.So one day about 2 months ago my right leg was itching painfully just beside my knee on the inner side of my leg.So I pulled my jeans up to look at it and there was a sore or lesion but it had something black barely visible in it.I thought maybe something had bitten me while I slept and that the black thing was a fang or stinger ( I just couldn't think of anything else it could be ).
So when I got home I got the tweezers and pulled it out.Well I kind of tripped out because it was what looked to be some sort of fiber, like a small black string and there was actually another that I pulled out behind it.
Anyway I just told my self that maybe I had bumped my leg on something and my pants had stabbed into my leg leaving fibers in the sore.I know that sounds dumb but it was the most logical thing I could come up with.
But get this.Less than 2 weeks ago I had the same thing happen again but this time on my stomache!And I have scars from both.
It scared me at first because the sore on my stomache acted like it wasn't going to heal but it finally did thank God.
I have other symptoms too like the ears itching painfully but I just really try not to scratch them or touch them with my fingers because infection scares me more than anything.
Anyway I am not going to go to a doctor because it doesn't bother me that much. I have a very high tolerance for pain.And prayer along will power keep me from being overcome with this. However if it does get worse or starts occurring more frequently then I will go to a doctor for sure!

I'm happy that I'm not the only one with this problem and I can sympathise with all of you who do have it, its awfull. The summer of 1993 I aquired my first spot on my right shoulder it was a super tiny raised spot of what appeared to be dried blood, when scab was scraped off it bleed alot and then it started itching and wouldnt heal, I have seen 6 skin specialists with each one telling me something diffrent.I have tried antibiotics, skin creams . All that they recommended and still no results. Now my skin is so scared up I dont dress like I would like and people think I'm contagious and it causes anxiety and depression.I now have trouble with my memory bad, also just the other day I had one on the inside of my lip, for all I know they could be inside me all over and me not know it.

OH MY GOD, I CANT STOP CRYING. I JUST FIGURED OUT I HAVE THISAND IT FEELS SO HOPELESS. I AM AFRAID TO TELL ANYONE BECAUSE IF THEY EVEN BELIEVE ME THEY ARE GOUNG TO RUN. I KNOW I WOULD. ALL I CAN THINK ABOUT NOW IS MY SON, HOW DO I PROTECT HIM, IS IT TO LATE, MY GOD HOW COULD THIS BE HAPPENING HOW COULD OUR GOVERNMENT BE LETTING THIS HAPPEN TO US. THERE HAS GOT TO BE A WAY TO REACH EVERYONE AND FIND OUT WHAT WE ARE DEALING WITH. GOD PLEASE HELP US, I AM SO SCARED

I do not have morgellons but I know one person who has had it for at least 10 years. Two other people I know also contracted the disease which they have since gotten rid of. They both went to a dermatologist (togeather they are a couple) and he perscribed them Pyramatheran (spelling?) which is a parasite pill used on animals. She also washed her house down completely walls and all with straight Molythyon (instestide) and took bleach baths. She treated her house every 10 days she believes the the infestation is like fleas with eggs hatching every 10 days. She did this for a few months and is now Morgellons FREE. It is a scarry thing and I do not have the disease but have seen it and believe it is real. Primetime live will have a segment on Medical Mysteries August 9th at 10p.m. I hope this info. will help some of you and ask your doctor to perscribe the pills. GOD BLESS ALL OF YOU. I PRAY FOR A CURE SOON!

You might consider contacting Dr. Omar M. Amin Ph. D. is a professor of Parasitology at Arizona State University, Tempe, Arizona and the Director of the Institute of Parasitic Diseases (IPD) and it's Diagnostic and Educational Laboratory (DEL), Phoenix, Arizona. He is a recognized authority in the field of Parasitology with over 100 major scientific articles and books to his credit. He helped my mother heal when she came down with these symptoms. Contact Dr. Amin especially if you have had a lot of dental work done as with my mother. www.parasitetesting.com

The reason the Dermies and Shrinks are insisting that this is delusion is because they know how terrible and real it is. And they suspect it is untreatable. So they prescribe antipsychotic drugs, in an effort to subdue the patients. Be aware that at the same time, some of them are experimenting, hoping to be the first to find a way to kill this parasite. Check it out! ORAP, one of the commonly prescribed antipsychotic drugs, contains BOTH a vermicide AND an antihelmintic. Ask yourself WHY!

rxlist.com

chemicalland21.com

ORAP (pimozide) is an orally active antipsychotic agent of the diphenyl-butylpiperidine series. The structural formula of pimozide, 1-[1-[4,4-bis(4-fluorophenyl)butyl]-4-piperidinyl]-1, 3-dihydro-2H benzimidazole-2-one is:

GENERAL DESCRIPTION AND APPLICATIONS

Benzimidazole is a white to slightly beige solid; melting at 172 C, boils at 360 C, slightly soluble in water, soluble in ethanol. It is a dicyclic compound having imidazole ring (containing two nitrogen atoms at nonadjacent positions) fused to benzene. Benzimidazole and its derivatives are used in organic synthesis and vermicides or fungicides as they inhibit the action of certain microorganisms. Examples of benzimidazole class fungicides include benomyl, carbendazim, chlorfenazole, cypendazole, debacarb, fuberidazole, furophanate, mecarbinzid, rabenzazole, thiabendazole, thiophanate. Benzimidazole structure is the nucleus in some drugs such as proton pump inhibitors and anthelmintic agents.

I've had this disease for twenty years now. I had a bump on top of my head for many years, and it felt like something was biting me every now and then. I killed it with insecticide, dropping a few drops on it and rubbing it in. It went away after a few days. I believe this disease to be a fungus that assimilates its cells into insects. TRY TREATING IT WITH VAPOR RUB, SATURATING THE SKIN. THIS SEEMS TO HELP GET RID OF THE FIBERS AND BLACK-SPECK-AND-PEELING SKIN NETWORK THAT BUILDS BETWEEN THE LINES OF MY FINGERPRINTS.

I had Morgellons in 1993 and 1994 while living in San Francisco and Oakland. Only white fibers.Passed
the sanity test by shrink at U.C.S.F. med cntr.Most
docs there said I was crazy.One doc gave me one dose
of ivermectin which was only partially effective.
I then healed myself using essential pine oil on skin every day for many months.I have been fiber free for 12 years.
Yes it is for real. I know the nightmare.I don't know if this will work for anyone else. It takes a long time. I kept cleaning house and clothes and everything. There maybe be more than one cure.
I wish I had kept journal and made videos with people to witness.
Some people who think they have it are confused.
Other people really have it.
Some good photos and videos with the fibers sticking out of skin will do more than waiting for
CDC.I know its hard to know to what to do when you
have it. Please get a camera.

If you are interested in Morgellons Disease or experience Morgellons symptoms, I would like to invite you to participate in the Morgellons Disease Information Community and Message Board at morgellonsite.com

The black fibres people are describing sound very much like ingrowing hairs, which tend to wind around inside a lesion. This is a very common condition. Often, it appears to be more than one "fibre" as in the process of winding, or curling, inside the skin, the hair will often break. Many of the other symptoms sound like various forms of eczema and dermatitis, seborrhaeic and/or otherwise (or blackheads, as one astute observer points out).

It's highly significant that the vast majority of patients reporting with this condition are also suffering from Lyme disease, which is a tick-borne illness very common in rural parts of the United States (hence the prevalence in Texas) but not confined to rural areas. One of the major symptoms of Lyme disease is a dermatitis-like rash, known as erythema migrans, which can produce the characteristic track marks also described above.

Above all, don't panic. Lyme disease can be treated with antibiotics and most skin conditions will clear up with treatment. But left untreated, it can become very serious. I know from personal experience. Appropriate topical treatment, moderate change of diet and exposure to sunlight (and saltwater, if you're lucky enough to have it nearby) will often bring about a "cure" for many of these conditions, although some need more careful management.

My tip: get a referral to a dermatologist and have whatever it is you have properly diagnosed. Don't diagnose yourself off the internet. Medical training involves a six-year course of study, followed by a wealth of on-the-job experience.

Half an hour of googling won't give you an accurate diagnosis.

I can't comment on the black stuff,it didn't happen
to me.
Topical treatment,cleaning my place,building up my
immune system worked for me. Also shaving my head
helped.I agree on that part.
The derms are just wrong.So don't waste your time.
Dr.Randy Wymore of OK.State will be proven to be
correct.The history of medicine has numerous examples where most doctors were wrong.Dr.Lister was
ridiculed for washing his hands.Recently,Dr.Kilmer
McCully was forced out of Harvard in the 1970's
because of his Homocysteine theory of heart disease.His theory is now widely accepted,but Harvard refuses to acknowledge him as the source
of the theory.
People need to be honest to themselves.Do they
really have the fibers under the skin.Or do they
have some other skin condition.
It is a real disease.I had it and I'm not crazy.

Are there any film students out there that want to
make a name for themselves by making a good video
that will convince people about M___.
There are already lots of unconvincing videos.
Every shot doesn't have to be extreme closeup.
Time for film students and M.people to meet each other.
I also think people should all ask the Google Foundation to think about funding research.

Ive been suffering from the disease since 2001 when I worked at a plant nursery in MD. Since then Ive tried everything from Kwell, Lindane,to enzyme cleaner in my bath water. All of these seemed to work temporarily, but it always came back. I dont know how much money and time Ive invested into finding a cure for this disease whatever it is. I have all the symptoms from insomnia from the intense itching,depression, difficulty concentrating and other things. Ive also experienced the dismissive attitudes of many physicians who told me I was delusional as well.
Anyway, I had blood drawn and the dermatologist told me that there was nothing wrong. I wonder if they overlooked the possibility of Lyme Disease.
I will persevere as usual and eventually find out what is wrong. Until then does anyone know of a way to stop the itching? It seems to be worse when Im under a certain type of Halogen light that is prevalent in most buildings.

I have been compiling information regarding Morgellons Disease to help people find out the facts and theories about this mysterious illness so they can seek the appropriate medical attention the suits their symptoms, whether they truely have Morgellons or some other disnease/infestation. I decided to start this site after learning about the disease and the lack of solid information and research.

For the past year, my wife's had something very much like Morgellons. She does have those strange fibers. But, the main difference is that she has bugs coming out of her body. By bugs I mean insects and such arthropods.
Like everyone else here we hit our heads against the walls of medical doctors(dermatologists, allergists, infectious disease docs). She was diagnosed with Delusions of Parasitosis. I was diagnosed by our psychiatrist with "folie a deux", because I believe in her delusions.
So, we gave up and started to do research on own own.
We bought a microscope and started taking pictures. I have HUNDREDS (!) of digital photos of the stuff that comes out of her. She has springtails, small basin flies, tiny larva, and tons of other stuff like insect legs, pieces of bug skin, heads, abdomens.... really... I wouldn't have believed it if I hadn't seen it with my own eyes. We have carefully documented the photos and still have some of the actual samples preserved in alcohol.
So, we went back to some of these same doctors and showed them the photos. Now, some of them believe that my wife has a strange parasitic infestation, they just don't know how to treat it. Others, remain skeptical and have as much as accused me of making phony photos on my computer. (You know, it's hard not to punch a guy like that in the face!)
OK, so my wife has bugs. I'm not delusional. You can't photograph delusions.... But, the problem is that my wife is wasting away with this disease. Nobody wants to help her. She's tried every legal medication that's out there. She even tried some stuff from a pet-supply for horses and pigs. She's that desperate. She is in constant pain from the itching and the open lesions. The bugs come out of her on a daily basis. Are they eating up her organs? Are they damaging her brain? She's given up hope.
We're so tired of doctors telling her that she has anxiety disorder. Heck, wouldn't you be just a little anxious if bugs were coming out of you?
So, my post is not just a rant.
We need help.
I'm willing to do whatever it takes to have my wife healed. I'm just running out of places to go. If anyone can help me, now is the time before she becomes just another statistic. I don't want to lose my wife. Thanks.

I'm having very good luck with Cipro (generic). This is an antibiotic for Anthrax. She needs to take 1 500mg cap every 12 hours for 60 days. Things will be much better after one week. While taking it avoid, milk, antiacids, nasal sprays, other antibiotics, muscle relaxants, juice, caffeine, excessive sun exposure. Read about Cipro.

If you cannot get it from a doctor (you probably cannot get more than a two week dose), then order it from another country. Look around...you can find it on the web. Generic name for the tablets is ciprofloxacin hydrochloride. You won't be sorry.

I wonder why every account of "Morgellons Disease" I have ever read explains people who bring in the fibers and black pepper-like spots in little baggies to dermatologists, yet no one has thought to not mess with the lesions, and let the stuff happen, and show a dermatologist or doctor? Of course they're not going to believe you if you don't show them it happening! "Describing the same symptoms" No shit, I mean, hello, usually diseases have the same symptoms. But you have to wonder if maybe some of these people are truly fucked, and if the others are making it up? I've never so much as heard of Morgellons until today and it seems like there are never pictures of the actual "fibers" and "spaghetti noodle strands" and "black spots" actually protruding from the skin. I'm still skeptical.

It's not easy to let it happen when you have it.When
I had it in 93 and 94 there were no examples for me to follow on internet or media. I picked the fibers from under the skin.Seemed like the natural thing to
do-like a splinter or thorn.
It tougher to get dr.app.at same time they are sticking out of skin then you can imagine. It's difficult to do anything at all.I don't know about
brain fog.I did have a tough time sleeping-so that
really made it tough to think at my best.
I was also ashamed to go out in public.I know I cried a lot in my room by myself.
I agree with Phoenix that people who have it now
need to make those videos and pics that are
convincing.You have all the advantages I didn't
have.You should know by now not to bother with
fibers in plastic bags. I took a bag to U.C. Berkeley lab and was told they don't examine bags
of fibers.
I'm skeptic by nature and experience.I'm also open
minded.
The greatest minds said in 1900 that man would never fly.Doctors in 1890's and 1950's discovered
that most ulcers were caused by bacteria.Even when
it was proved in 1982 most doctors refused to believe it.
When Scott Ritter said there were no WMDs in Iraq
all the experts said he was nuts.The majority of
doctors have been wrong numerous times.

I don't have fibers coming out of my skin, but I do have bugs with red and blue and green fibers attached to them. They then seem to wrap themselves up in these fibers and infest my clothes, furniture or anything else made from fabric. I have what looks like bites on my skin, and I just pray that it doesn't turn into fibers. I have been dealing with this since last November, a year now. It's not lice or scabies because I've been to several Doctors,who think I'm crazy. Like you say, if you take samples they automatically think it's DOP. They have gotten worse this month, about the same time as last year. Is there a site that shows the bugs that is supposed to be causing this? I came across this site while doing a search for insects with fibers.

there is a fantastic treatment that actually works! We have seen most lesion gone in 2 weeks, many people report back symptom-free in a couple of months.

I moved 5 times in the bay area until I was rid of the fibers. Then moved to boston.I think all the moving and disposing of all my stuff helped me get over it. Nothing is more important than your health.
I also think my immune system and sticking with one
plan instead of constantly changing defenses worked for me.Then again maybe I was just lucky to have it
back in the early 90's. It has no doubt mutated into
something much tougher to deal with now.
I first had something resembling poison oak. Then my feet got really huge. Then the fibers showed up.
I thought at the time that I was bitten by some
bug which I later concluded was a vector for a
worm.And maybe there is some bacteria involved
somehow.
If there is some bacteria or some other x factor,
then the way it seems to start or appear might vary from case to case.
I stayed with pine oil for a really long time.Not a 2 week deal. It may not work for anyone else and
the fda warns against using it.
I don't know what I would do if I had it now.Does anybody have it in N.W.Ohio?
I bet there are lots of ways to treat it.I don't
mean to say it is easy.Several people in this thread seem to be on the right track.

Has anybody tried making bathwater with alfalfa tablets and laundry detergent? Some people claim it
works. I don't think it could hurt you - as long as
you use good quality alfalfa and are not allergic.
I'm sorry if it doesn't work.Sometimes you just have
to take a shot.

I like Joseph above became infected with this in the early 90s. My infection is mainly internal with severe systemic illness and profound Central and Peripheral nervous system involvement. I believe that the generation of organism that I was infected with is not as contagious as the current version. (It is a fact that this organism changes generationally.) I believe that I contracted this during surgery.
I finally put the name to my illness only a couple of months ago. I have suffered for over 11 years with chronic illnesses involving the CNS and autoimmune response always accompanied by mysterious skin lesions that tested negative for bacteria when biopsied. A couple of months ago after my hair started falling out in handfuls and my scalp was covered with itching sores I opened a lesion on my neck that was particularly large and hard. There is no feeling inside these lesions. The small sore on the skin is just the 'tip of the iceberg' so to speak. There was a huge deep grey-black pocket under the surface and inside I pulled out fibers, black debris and hard twisted objects that looked like little pieces of seaweed or little hydra. I have since opened other lesions and found similar material. I was too vain to pick at them before but when they did open I always noticed that they formed an ulcer with a bluish-black center. Now that I finally have a name for this crippling disease I feel quite relieved and vindicated.
I was a six-mile-a-day runner, avid athlete and vegetarian when I became ill. Now, eleven years later I have the vitality of a 60 year old. I am in the late stages now of this infection and I fear that it will be my demise.
I have been in and out of the hospital over and over with scary symptoms that look like stroke, MS, ALS, Lupus, shell fish poisoning, COPD (flat diaphragm with trouble breathing) heart problems (multi-focal atrial tachycardia) and much more. I have been tested for everything and only symptoms could be verified. The cause has never been found...until now. The truth is that this thing is caused by an organism which has been cultured and is being studied in the Netherlands. It does emit a neuro-toxin and this along with the strangling, ever creeping, growth of the fibers causes neurological problems. Long term exposure to this organism causes degenerative neurological disease. This thing does not go away. It has cycles. It is acute, latent and persistent. I don't mean to scare anyone who thinks that they are cured but I have my latent periods when I thought I might be over it too. It doesn't go away. You can see the organism and contact the researcher at: www.silentsuperbug.com. The scariest and most controversial part of this whole thing is: this is believed to be a genetically modified organism, a 'stray target of a proteome research laboratory'. Translation: this thing is man-made. Imagine the implications...imagine the chilling effects on genetic, stem-cell and nano-technology research. It's staggering. Either American doctors are too proud to recognize that the Netherlands is way ahead on this one or it is simply way too much of a political hot potato. (Learn more about the politics of disease by watching the brilliant movie or reading the book: 'The Band Played On') My dermatologist wouldn't even look at the silentsuperbug website. I'm dumping him and going to Mexico for Itraconazol. Go to this website and contact the researcher PerDaniel BellVanEden by registering there. WWW.SILENTSUPERBUG.COM !!!! He has brilliantly provided me with tons of very helpful information about this organism and how to fight it. He is my new hero. You all can do or believe whatever you want but I've found my answer. Keep hammering the CDC and be sure to shake hands with everyone you meet. A cure will not be found until enough rich, high profile people become infected. It will take a few years but this thing is already recognized by the European CDC. It's only a matter of time. I hope I have time... ( =
I welcome your responses and opinions.
Grace and Peace
Lorri in OC

Morgellons is not a disease per se but a super saturating infestation. Initially it is brought to the sufferer from another person who has an unknown active entity which is visible under a microscope at 300x power. This entity invades almost every porous cloth type material and stays there. It then slowly and steadily penetrates any material that it comes into contact with including human skin. Once this concept is accepted as the situation then removal can be accomplished. There are products which work to do this. People have to be able to do radical changes to their environment. I have done such and have become 99% symptom free. I still am susceptible to external attack from common public environments, such as doctors offices, hospitals, classrooms , etc. where active sufferers give off morgs. But I know how to remove them and return to a non suffering state. The illusion exists when a sufferer thinks the disease is from within only the more severe cases are internalized. In my case it is now a totally exterior attack.

There is no question that this can cause further ailments such as skin infections and psychological trauma. If a person has no idea what is going on and the medical profession doesnt either and the government agencies geared to protect us dont either then hopelessness is a foregone conclusion. Here too there is hope as I have stated above. It is in learning your enemy and applying the correct solutions to solving and removing this dastardly entity

As scarey as this disease has been I do feel the hardest part has been not having any physician support our quest for good health. Even the ones who felt something was going on would pass us on to yet another road block. I wonder how they spent their holidays? Good thing I didnt have to turn down any holiday parties for I was to busy trying to keep my family in good spirits despite the fact they miss their father who was taken by this disease and they too are ill and no one seems to care. I have seen this affect 4 generations in my family and we too have had all the diagnosis' of Atypical ALS, Lupis Like, Parkinsons, Lewey Body Dementia, ITP, CMT, Frontal and Temporal Dementia, Unknown infections, swelling, fatigue, headaches, the list goes on and on...

The Skin problems are different in everyone and yet the same. This has been the common denomanator that came later in the illness. To be honest, one of the easiest to live with. I have also had the lesions with all the fiberious material surrounding an organism that is in large numbers. I am also pretty sure that if anyone who has seen what I have under the microscope would want to remove it from their body too!! Everyones scalp has been affected with lesions, hair loss, itching, and a waxy coating. Doctors have explained this as stress and subacious cysts that are very common. Funny how we didnt have them before and now children and adults all do.

I think one of my biggest questions is if Physicians tell you that this is out of their relm, and state that they dont have the time or facilities to help, the health departments and CDC make public statements but never follow thru with any of their claims, who is responsible for the fact that my family can no longer participate in school, work, sports, or really any other social event because their bodies no longer keep up their brilliant minds???
How can certain physicians make a public diagnosis when they never have seen you? Is dermatilogist qualified to make a psychological diagnosis? I had neuro-psych give diagnosis that was not depression but frontal and temporal cognitive changes after extensive testing. He also had significiant improvement after treatment with albendazole for parasitic infection. Both physicial and mental improvement but declined after returning home and physician moved and did advise health department and CDC.
We will keep praying and looking for answers, even if it is at a slower pace now.

Anne

I know that some want to believe that this disease is just skin deep but for most people living with this infection it is not just in the skin. That is only the beginning. If it helps you to think that then go right ahead but I, like Anne, know better. I think that the mode of transmission has also not been proven. It may vary from person to person and therefore affect their disease process. I'm also unsure that the definition of disease here is properly understood. This DISEASE is caused by a specific pathogen that has been cultured and studied. The treatment protocol for a cure is not yet known. However, I can pass on this information: Per Daniel Bell VanEeden, a researcher in the Netherlands who studies this organism, recommends Itraconazol along with other antibiotics to control its growth. He also recommends intermittent whole body washing with Selsun Shampoo to keep the growth down on the skin. This organism's base is a cyanobacterium fused with a trypanosome (parasitic) element with multiple genetic expressions. It also has fungal properties thus, the Itraconazol. I recommend that sufferers go directly to the researcher for information and advice as you will be dealing with a very educated and brilliant man who has been studying this organism for years. He was very kind in dispensing information to me when I contacted him. He is very kind and very knowledgeable. Do yourself a favor and send him a brief, non-hysterical email and he will respond with lots of information. Remember that he is our champion and is on our side. Treat him with the utmost respect, please. His advice will be 1000 times more accurate and valuable than anything else you will find posted on a message board. Contact him be registering at his website: WWW.SILENTSUPERBUG.COM
Grace & Peace.

Entomologist Richard Fagerlund is collecting samples
of fibers and bugs.He can be easily found on the
internet.He wants to prove it one way or another.

It says, here,

"Add your comment, speak your mind".

Y'all sure do. Your minds need serious help.

Smileykins/Kristi why can't you be nice to people.If
all the people on this site have mental problems then please be kind. Maybe we should go back on our meds. I understand they give them to people with
general anxiety disorder.
I've been to shrinks.They all say I'm o.k.
I'm a healthcare worker now.
I deal with people who have mental problems.I have to be nice.

For those who have not found doctors who will give them antibiotics etc. give this regimen a 10 day to two week try.(it is fairly expensive so if it doesn't work give it up) You will need:10 one lb. boxes of baking soda (I have found it for .50 cents a box at a dollar store); one bottle of light body oil (K-Mart has a Neutrogena like one[American Fare] for half the price of Neutrogena about .50 cents /oz); a one oz. bottle of Tea tree oil (Walgreens has an occassional two for one sale of this [SunDown]which makes it about $5.00/oz: one bottle of medicated calamine lotion (Top Care is one store brand which is cheaper); and medicated selsun blue shampoo (Walgreens just had a sale on a Walgreens' brand of this type of shampoo for $3.00 a bottle). Method: Choose a time of day when you can have the bathtub for about an hour. Mix the tea tree oil in a plastic bottle with the light body oil. Put several dry washcloths beside the tub and a paper towel also. Pour one package of the baking soda in the tub with several inches of hot water and get in the tub. After you are in the tub add one oz of the oil mixture (this will make the tub very slippery so use great care when getting out of tub-put dry washclothes on the side to grip the tub if you don't have grab bars as your hands will be slippery and wash the tub carefully after you get out to remove the oil) and continue to fill the tub. Immediately, start pouring the tub water over your head to get your hair wet and then use a clear mild shampoo to make a good suds down to the scalp and leave the suds on the head til the end of the bath. Sink back in the tub and enjoy a good soak. If a finger goes to a scab wipe it off with the paper towel as I believe these little critters can survive in water. Rinse the hair off with the bath water and towel dry and then when completely dry rub calamine lotion in all the areas which have active lesions. If your bath is in the morning rub calamine lotion on again at night without the bath or vice versa. Do this several days in a row and then skip the bath and take a shower using the selsun blue as both a shampoo and a body wash and again follow with calamine lotion. Then start over the next day with the bath. You should have enough oil for 9 baths and this should be enough time to see if you are improving-if not, it is not worth the time and expense to continue. Either way, if you should choose to try this regimen let this board know whether or not it was successful. Use your head-use all products as directed and if you notice a worsening or irritation drop the treatment immediately. Use care with the bath oil and use clean clothes and towels and keep all combs and brushes clean and think positive thoughts. Good luck.

Joseph. Is it all right if I refer to you as Joseph No. 2, since there's apparently another Joseph posting too? I don't see anyone posting under the name, Kristi, and, excuse me, but I don't understand the reprimand. I am nice to people. If you've been to shrinks and they all tell you that you're o.k., (although I don't know why it was necessary to tell me that), then, you're faring better than much of society, including me. So, since you've referenced that you're a healthcare worker, now, and that you deal with mental patients, can you speak for the ones who say they have "morgellons disease", and tell me what they want? They've made the world know that they're proud to exercise their right to not treat their mental condition(s), making us acutely aware of the severity, in explicit detail, and, honestly, Joseph No. 2, it defies ALL laws of nature that they've forced the government to take control. Anytime we invite them into making decisions for us that we can make on our own free will. Oh, Joseph, can you tell me what they want?

Smileykins I'm sorry if I confused you with someone
posting on another site named smileykins/kristi that
said she was stopping her meds for g.a.d. We all make mistakes.Is there another Joseph here?If there
is---Hey J.
You don't seem very nice.You say everyone posting
needs serious mental help.You must be a mind reader
with perfect judgement.You've never examined the bodies of all these people.So how do you know?
I might be confusing you with some other people.A
couple with past problems that now pass judgement on
people with morgellons.
What are these laws of nature that people are going against when they demand the govt.do their
job?
Why are you asking me what these people want?
You should already know- since you know how their
minds work. How their bodies work.
I'm telling you I'm o.k. because you said everyone here needs mental help.Why should anyone resent
your all knowing judgements.

Hi, Joseph. I'd noticed a previous "Joseph" that had posted, who believes in "morgellons disease". I think he said he'd once had it. Since you're a healthcare worker who deals with mental patients, that was why I asked you what these patients want to accomplish through forcing the government's involvement. Thank you.

I had morgellons disease.Dermatologists sent me to
Psychiatrists.They said I was not like crazy people
they see.They thought I had a skin problem.Back to derms who repeated that I was crazy.
I cured myself.
I don't expect anything from the govt.-I don't trust
the govt.
I want to thank the people that convinced the c.d.c.
to start the investigation starting up in l.a.
I want to thank sen. di.fi.-never expected to be saying that.
People want their suffering to stop.They want
answers.
I'm hoping for the best from c.d.c. and expecting
the worst.
Can't say much about my clients.I do give meds.
A necessary evil in a lot of cases.If people don't
need it,that is really the best.People who really
have m. don't need it.
gators rule- ann arbor the town and kfjc d.j. rule
Norcal rules-TX. is cool.
No winter yet in OH.-my husky is missing snow.

Hello, Joseph. Do you think there are very many "morgellons" sufferers who have the capacity to understand that taking medication, on their own accord, is preferable to being forced into treatment, someday, under the viable possibility of their movement creating new mental health legislation? Thank you.

Sorry- I didn't mean morgellon sufferers taking any meds or anything else they don't want.I'm a history buff,so I'm aware of all the things that have been forced on american citizens in the past.I hope that won't be the case ever again.

I just read about the c.d.c. branch dealing with unexplained deaths.They can only solve about 15% of the cases they take on.Who knows if the morgellons crew that they have put together are even that good. It took some bike mechanics from OH. to discover flight. I'm not counting on the usual suspects to solve m.

But Joseph, the reality of the situation is that patients refused to treat, after they were repeatedly diagnosed. Due to their varied states of psychosis, and associated skin problems, they continue to join up to this shared belief that they have something other than what they'd been told.

The CDC repeated, in letters to everyone, to see their local healthcare providers if they needed treatment. Morgie patients, for the most part, ignored that, saying they already had, and they knew what to expect.

I firmly believe the main reason the CDC reacted, was not due to Senator Feinstein's letter, but due to the media coverage on "morgellons disease" last year. The stories were responsible for alerting the public to an unnecessary fear, and the CDC had to do something.

I realize that many of these people profess to despise, and some live in fear of, the government, and for that very reason (as well as, so many others), their "morgellons disease movement" defies the very laws of nature. When we want to live in a free society, we don't invite, let alone, force, the government to step into our affairs.

Since you're in the mental heath field, you know the history, and that this is likely to result in a step back, albeit a slow and tedious process for our nations' lawmakers. People like this should demand help, and this section of society has been under served since the reform movement, but I don't think they fully understand the ramifications of their actions.

It's very tragic that this all came about, with so many horrible consquences occurring in these patients' lives, when all it required was someone trusting the advice of their doctor, in the first place. So, that is what I meant by my question, "Do you think there are very many 'morgellons' sufferers who have the capacity to understand that taking medication, on their own accord, is preferable to being forced into treatment, someday, under the viable possibility of their movement creating new mental health legislation?". Thank you.

Watch The Dr. Phil Show on Thursday, January 25th, to see a woman with "morgellons disease" concerns. I'm not certain whether her appearance is due to believing that she has it, or whether she is in need of reassurance that she doesn't.

Smileykins is a disinfo agent. He/she is from the Morgellonswatch website and spends every waking moment trying to discredit people with this disease. One has to wonder why anyone would be so interested in Morgellons if they don't have it themselves. Why, I doubt most Morgies have put as much time and energy into researching this disease as Smileykins has trying to tell us we're all delusional.

I've been reading with much interest... do not listen to the cheap disinformation from God knows what agency(s) - these people spend every waking minute tracking people posting about this disease to discredit... just these two in particular... isn't that a bit weird to you? Go to www.rense.com.... listen to the audio tape # 6, Dr. Stanigar and Dr. Karjoo have found chimera that are some type of genetically engineered bacteria w/multiple species dna, as well as nanoprobes... we might even be dealing with the initial stages of a pandemic as we speak... possibly "targeted" humans?

You have to know that there is some serious trouble in the air when all the government agencies go to such lengths to NOT look... from the beginning all the doctors internationally prescribed Orap and gave a DOP diagnosis... that fact alone is too coincidental... babies, dogs, horses, get it... they don't conjur delusions. It is reported on 6 continents.

There are a small number of "research" forums which are exactly that... and... a few "disinformation" forums that venomously try to promote the DOP propoganda... toooooo venomously... CDC won't do anything but stall even though they claimed to be investigating... as well as other research labs... stalling... stalling... wonder why..?
This is a coverup in the highest magnitude.

Biofilm bacteria settles in a host, future bacteria can find the host with biosensors similar to how pheromones work... especially if the chimeric bacteria uses the sensor portions of a myriad of species - Check out John W. Martin's papers on stealth virus and see how it's done... - just switch the inserted virus in the bacteria and bang!!!! bird flu and a large infected group around the world fly away... just theories.

The stuff about the multispecies chimera is accurate... any lab student can purchase varieties of them for research purposes. Just gotta wonder, they won't talk about chemtrails and they won't talk about the polymer filaments being manufactured in these peoples' bodies... why is that?

The infected also report of "tones" they can hear... like sonar and at higher and lower pitches... hummmmmm... And what do the infected people have in common.... maybe not genetics as much as...political or moral views? Why not?

Just thinken bout' things....

#60 -- January 22, 2007 @ 17:46PM -- texasmorgie

Smileykins is a disinfo agent. He/she is from the Morgellonswatch website and spends every waking moment trying to discredit people with this disease. One has to wonder why anyone would be so interested in Morgellons if they don't have it themselves. Why, I doubt most Morgies have put as much time and energy into researching this disease as Smileykins has trying to tell us we're all delusional.
__________________________________________________

#61 -- January 23, 2007 @ 02:40AM -- Maggieagain

I've been reading with much interest... do not listen to the cheap disinformation from God knows what agency(s) - these people spend every waking minute tracking people posting about this disease to discredit... just these two in particular... isn't that a bit weird to you?
__________________________________________________

Enlighten me, and everyone reading here, with how I know you, and when there has been anytime that I've made a personal attack on you. I don't appreciate this, but I need you to be specific, and honest. What has warranted these exaggerated lies about me?

I don't doubt that you're ill, and that you need serious help. You need to try understanding that the freedom of several people expressing their opinions, is in no way capable of detracting from, or diminishing, in any way, an actual infectious disease, though, and it is not deterring the undertakings of the CDC.

Don't wonder about me, and tell lies. Ask me anything you want to know. Go to my blog to vent, and say anything that you wish. Any person who thinks they have morgellons disease has yet to do that. They take pleasure in lying about me, just like you have, in public forums, like this.

Excerpts from the comments' section on my blog, made by me, Smileykins, someone who'd had DOP for two months, five years ago:

"I could have quite possibly thought I had to give up and just lay there and die from a deadly disease...one that does not even exist. Seriously, imagine that!!! And people wonder why I'm so pissed?"

"How many have died, just the way I could have, if I had heard of it back then, and believed all the damned hype at a time when I was vulnerable?"

Excerpt from a viewer of my blog:

"After a long night of internet research on my symptoms (most of which had to do with morgellons), finally, I came across "It All Started With A Young Boy Named Drew". I've suffered from these symptoms for over a year now. Up until a couple months ago, I've lived in a secret hell, afraid and embarrassed to tell anyone of my bizarre symptoms and rituals to manage them."

"It was the story of Smileykins that finally gave me some comfort. Out of all the blog battles, doctor and scientist reports, and everything else i read on the internet relating to the symptoms, your story was about the only thing that offered me an explanation that made sense."

You should be ashamed. You don't know me, and I have done absolutely nothing to you.

I know Smileykins in a close personal way, and I know that she is an honest person. She's retired on a disability, and she works for no one. She does have a lot of time to spend on her computer, and she has done extensive research on the topic of Morgellons. I know of no one else as knowledgeable on the topic as she is. She is certainly no agent for anyone. She is very compassionate and cares very much for the health and well being of everyone. She's also very concerned for the health and well being of everyone's pets. She's extremely intelligent, and she knows exactly what she's talking about. You believe what you want, but there is no Morgellons. People who think they have Morgellons have a wide variety of physical and mental disorders. The most common of disorder which the "Morgies" share is Delusions of Parasitosis (DOP). Most of the registrants at the Morgellons Research Foundation have each received that diagnosis from 10 to 40 times. There's no evidence that Morgellons is a distinct disease or anything new. But there's certainly a lot of evidence to the contrary. There's also a lot of evidence that the Morgies are suffering from mental problems. It's no disgrace, and that shouldn't considered to be an insult. The brain is an important organ, but it is just an organ, and its chemistry can, and often does, get out of balance. It can be adjusted, but that's very difficult when the patient refuses the needed medication. With the media blitz, DOP has come out of the closet and gone mainstream. The government got involved because of growing hysteria. They have know for several years that Morgellons is DOP.

By the way, when I wrote last month I forgot to mention that your pc spits out morg dust which becomes morgs which attack us. More insult to injury. You can get healed by removing your cloth type materials and/or washing them in various cleaning agents. Cloth holds them near to us and they attack from this location. Older rugs are also morg locations.

What about kids and babies infected, not to mention pets? I suppose they're all delusional, too.

They need protected from people who refuse to treat mental illness.

Listen, I wasn't meaning to be a smart ass. Far from it. But, you asked a question that deserves an honest answer. I know all about the people who think they have this, who are psychologically damaging their children, some even picking at them, too, as well as not seeking medical attention out of fear that their children will be taken away from them. That is clear cut child abuse and neglect. How would any of you have felt, when you were children, to have parents behaving in such ways as "this disease" causes you to? Many also talk about animal abuse in allowing their pets to be neglected to the point of death. They say they "died of morgellons disease". I read it nearly every day on the message boards.

I mean, I read that "kids, babies, and pets" have this. I'd thought that one of my dogs had caught a new deadly disease from me, too, when I was DOP five years ago. I took care of him, though, and he recovered before I did.

Smileykins, go get a real job. Why are you so interested in trying to discredit people with Morgellons? It seems to a full-time job for you. Do you have some sort of axe to grind? It's likely you're being paid to spout this nonsense by whoever unleashed this on the population (whether on purpose or acidentally). I live in Texas, I work with the public, and I can tell you that I see thsese lesions on just about every person. I think you're the one who's mentally ill. [Personal attack deleted]

texasmorgie, you know that you lied about me, here. I don't know who you are, but know that I have never done anything to justify such actions. Stop being so childish, and messing things up here, since you have an issue with me, and take it to the below link. You could have clicked onto the "URL" next to my name, anytime.

I await the opportunity to talk this out like civilized adults.

Ryan Webster, Eric Olsen, and others, I apologize.

I am a Morgellons sufferer. When I was first diagnosed, I could not get help from anyone, including the doctor who diagnosed me (I had never heard of Morgellons). By the grace of God, I found a website that offered some hope. The director of this site is a sufferer and has spent over two years researching the disease. When I contacted the director, via his website, he actually called me in the U.S. from his home in Germany. He spent hours on the phone with me; giving me needed information and support. The cream he produces, called DSP, is magic, in my opinion. It not only soothes but it also kills the parasites on and under the skin. Finally, I had relief, after months of agony, and I could function again. This man has a big and tender heart for all Morgellons sufferers. Something severly lacking among the medical professionals and others, like smileykins, who have no idea how horrendous this disease is to live with. I have no idea what you are talking about regarding Morgellon sufferers not agreeing to treatment. But I say, if anyone wants to give me a "pill" to rule out delusions, bring it on! I wish this was delusional. It is bizarre and alien and difficult to understand if one does not have it. But it is very, very real. My home is open to anyone who wants to spend a short time seeing for yourself. It will only take a couple of hours for you to see the fibers and the many other bizarre happenings we report. Then you can talk! But for all you sufferers, I do hope you contact the website: Morgellons Research. You will get a lot of information and kind, personal support from this site and the DSP cream is fabulous.

Fidelity

My very wonderful angel friend in Atlanta has Morgellons Disease. I do not. She has been a dedicated nurse for years and years, and the one thing I know for certain is that she is so NOT delusinal.She has been focused and determined for the past year, and I fear she is losing her will to fight the battle of clean-up before using anything(sink,shower,toilet)and then to clean up after each use.She is tired,and I cry for her daily. This is a hideous disease, and research shows that our government KNOWS ALL TOO WELL about it. When Morgellons becomes another AIDS (which is a test tube disease also)then; the Drug companies will have enough people infected to make a buck with a new drug, the lobbyists get their share of the money by bribing the Politicians to secretly stick it in some Bill on Capital Hillto benefit the Drug companies, and you, all the sufferers, your kids, loved ones, pets will pay through the nose to get it. Everyone needs to make a lot of noise about this disease. Write and call your congressman, senators,make and post videos to myspace on-line, tell Oprah! This disease is going to be inherited by our kids, our future if we don't stop it. My friend is not crazy, this is a real urgency. If we the people take back our power, we can make doctors, reseachers, government listen.They spend billons going to the moon. We need them to spend that money on the citizens and taxpayers of this country fighting real hardships. We deserve that much for our years of paying taxes and sending our families to die in other countries. My friend deserves a cure. What do your kids deserve?

Janet Fedeles, I don't know you and you don't know me. If you have the false belief that I have done something to you, take any problems you have with me here...

Smileykins

Janet Fedeles,

No one has said that your illness isn't real. Delusional means that your beliefs about what you are experiencing are unshakable, but not based on the evidence. All Morgellons believers are delusional. I don't care who they are. Now, you talk about Smileykins, but there's no other person in this world that knows as much about Morgellons as she does. She has suffered more than you could ever imagine. Until you learn the facts, you need to quit spouting off.

Tall Cotton

Does Smileykins have Morgellons? Not from what I read that she wrote; I apologize if I am wrong. But if she does not have it, then she does not know ALL there is to know about it. I am not going to get into anything with anyone here. I am writing my facts about having Morgellons and an opinion about how someone 'sounds' on this blog. This is all I will say and this is why I am here. Not to argue with strangers.
Fidelity

Jane Fedeles, go leave what you need to, for me, and let's clear up this misunderstanding on my blog, after you read all of this one.

It's obvious that you haven't read it all. You're saying that your intention NOW, isn't to "get into it with anyone here". You've even referred to me as "a stranger", NOW, after naming me, personally.
Remember this?...

"This man has a big and tender heart for all Morgellons sufferers. Something severly lacking among the medical professionals and others, like smileykins, who have no idea how horrendous this disease is to live with. I have no idea what you are talking about regarding Morgellon sufferers not agreeing to treatment."

In the world I live in, we play fair, and when a person is named and accused of something, Jane, that isn't the same thing as "giving an opinion about how someone sounds".

Since you didn't take your further comments to my blog, and, instead, chose to say something here, then, wouldn't you say, JANE, that it's now fair for me, *since you got personal with this stranger*, to give my "opinion about how someone sounds"?

You sound very ill.

Janet,

Were you not diagnosed with DOP. That's the correct diagnosis, and that's what you should be treating.

Tall Cotton

Dear Tall Cotton,

Your ability to diagnose a psychological condition (DOP) for people over the internet (or via phone call) must be truly unique, acually it seems to me to be almost supernatural! Where did you get this amazing ablity, were you born with it? Did you get special training for this in school? I asked my phycologist about this subject, she told me that she doesn't know of a psychologist or psychiatrist who wouldn't love to have this ability. She had never before heard of any doctor claiming to have this ability. Alas, she said that unfortunatly, even if she gained this ability (of your's) that she thinks she wouldn't tell her coleages for fear of having her credencials called into question. Or maybe she's just unfamiliar with some newer techniques you have been using. I told her I would try to find out more; please tell me where you abtained your degree(s) in phycology or psychiatry or other special training in this area. I would like to pass this info to my doctor, she said she likes to keep up to date on modern techniques.

Dear Janet Fedeles,

Please keep this phrase in mind: Illegitimi non carborundum!!!

These jokers that will give you a hard time all have an axe to grind and a WHOLE LOT TO HIDE. Please take care of yourself and don't waste to much time with with these clowns. A last bit of advice we should all keep in mind: The one who has all the answers is NOT the one you should be listening to.

Hang in there, the help will come sooner or later. (I've been waiting for the factual answers for ten years) There are now a bunch of good people working hard on this, finally!

Dear Smileykins,

I'm glad for you that you're all-better now, and your dog also. (I've been reading these bloggs some time now) Since your feeling so much better now, I wonder why you don't seem to be more happy, I wonder why you don't lighten-it up a little bit, you seem to be so easily offended. This is just an observation, I don't mean to give you a hard time or offend you in any-way.

People who are suffering now - are not happy, if concerned about helping, maybe be a little less critical and a little more supportive.

Of course people have DOP, and many people have Mogellons. If one has no physical illness, one may have the extreemly rare DOP (primarily in children and the elderly). If one has a any physical illness (including drug use or addiction) one may or may not have delusions, But the diagnosis cannot be (IS NOT) D.O.P. DOP is a diagnosis of exclusion. ALL ELSE MUST BE EXCLUDED. NO MATTER WHAT DELUUSIONS ONE HAS. IF THERE IS DRUG USE THEN DRUG USE/ABUSE IS THE DIAGNOSIS. NO MATTER WHAT DELUUSIONS ONE HAS, IF THERE IS AN UNDERLYING CONDITION (RASH ,ALERGIES, HYPERSENSITIVITY, IRRITANTS, FOLICULITIS, ACNEE, FLEAS, LICE, BUGS OR WHATEVER) IT CANNOT BE DOP. All these things (everything must be eliminated via tests and examinations before it is possible to correcly diagnose it as DOP. (Dermatologists commonly forget to check their own documentation on this subject).
Either you have Morgellons or you have DOP it is IMPOSSIBLE TO HAVE BOTH. It may not be obvious to all but Dermatologists (convinently forget that they) have no training is thier field on the diagnosis of mental illness; DOP is a mental illness, hummmmmmm, I wonder what could go wrong with senario.

Just curious, did you get you diagnosis of DOP from or verified by a psychologist or psychiatrist or was it only via a Dermatologist?

PS: My dog almost died from Morgellons (apparently), my Vet was baffled but did not discout the likelyhood of it being the same illness as mine. After a year of decline and torment, dozens of inconclusisve tests and biopsys and treatments the dog has huge sores and huge bumps all over, could barely move, had to be fed by hand, and after being immobilized for six months, was nothing but skin and bones. (A similar experience to my own years earlier.) The Vet. was close to convincing me to put the dog down. But I couldn't do it, I could still see the will to live in my dog's eye's, and my dog and I had been though hell together. I conviced the Vet. to keep treating the dog the best he could. After another month of feeding the dog by hand, literally carrying it outside several times a day for another two months; the dog started a VERY slow recovery lasting two years. I could not give up on my dog because I knew exactly what the dog was going through. The dog has finally fully recovered, unfortunatly I haven't.

Mike Lee,

I don't know where you got your information but it is totally incorrect. A person most definitely can be diagnosed with DOP and another ailment at the same time. You are misunderstanding what is meant by a diagnosis of exclusion. Other causes are only ruled out in order to determine whether or not a person has parasites and which of the 3 catagories the DOP is in. If a person is NOT infested with parasites and IF there is no logical reason for that individual to have that belief, and IF that belief is unshakable, that person has DOP. A person cannot have scabies and DOP, because his beliefs would be true, but he certainly can have thyroid trouble causing his symptoms, and still be DOP. In fact, he can be properly diagnosed with anthing except a parasite infestation, and still be DOP. It is not logical to believe that creepy-crawley, biting, and itching sensations are caused by parasites. The reason because there are far too many possible causes, and parasites is usually NOT the cause. Now, those are the facts. You can believe them or not.

There is no such thing as Morgellons. No one has it, and no one has ever had it. Your dog had some other problem. You have some other problem. There is no evidence that Morgellons is a physical disease. I know a lot of Morgies, and they all hold very tightly to that false belief. So far, their beliefs have been unshakable. That, is DOP. That doesn't necessarily mean that they have monosymptomatic hypochondriacal psychosis, but it is DOP, and it is psychosis, and it is a mental illness. You can go to any message boards of the Morgellons believers, and you'll be very lucky if you can find one person that isn't nuts. You can tell by listening to a person and hearing what they believe, and determine that they have DOP. I don't care what your psychiatrist or psychologist says. These are the facts. The main point is this. Morgellons is a lie, and theres some researchers and doctors out there that are exploiting Morgies for their money and to accomplish their personal agendas. Believe what you want to. That's what you're going to do anyway. Good luck with your health. I mean that.

Tall Cotton

Mike Lee, you sure went on about some things, huh. Well, now I will. You don't know, and, like others, you aren't even concerned to know too much about "morgellons disease". Same as them, you sure don't know about DOP and all its many causes. That's how it is for everyone who's under the false belief in the existence of "morgellons disease". The way this has happened, it's understandable, too.

When there isn't an underlying physical condition responsible for triggering Secondary Organic DOP, it's either the Primary Psychotic form, where it's the sole psychological disturbance, or it's Secondary Functional DOP, due to an underlying psychiatric condition. Treat the underlying physical condition that triggered it, and it will subside. Treat the underlying mental condtion that triggered it, and it will subside.

There's such an unusual arrogance in vigorously defending this belief in "morgellons disease", rather than wanting, or trying, to understand what has happened to any of you as separate, and uniquely individual, beings. The reasons nobody even seems capable of wanting to reason it out, and recover, is beyond sad. You're truly not a group of patients with the same symptoms caused by a new disease, and nobody will ever return to a better state of health until that fact is accepted. If it's something you need to hold onto, feel free, and I'm so sorry. Everyone knows that nobody can prevent that. People in the know, also know that believers can't tell that charlatans are having a field day capitalizing on "morgellons disease", and that it's beyond anyone to point it out.

Yes, I make no secret about taking offense when a stranger makes false statements about me, when I have done nothing to them, personally, and then they're too cowardly to address the misunderstandings with me and resolve it. That's common, with this topic, though.

And, Mike, nobody diagnosed me with DOP. Anybody can get it. Five years ago, things that shouldn't have been happening, were, and I knew all of it couldn't have been. It was though, until I recovered. Thank God a physical condition triggered it, and three years after it had occurred, my daughter told me about hearing of something that was just like what I'd gone through, and that it was called, "morgellons disease". Then, I joined up to lymebusters message board. What a ride.

Since last spring, so many "morgellons" believers have accused me of being a heartless doctor, a med student, or some kind of undercover government worker that's helped unleash a plague on them, and that I'm trying to cover it up. I swear to God, I'm merely a regular person who's upset that people can't take care of themselves properly, as well as others who are supposed to be in their care, and that they're all vulnerable. I don't like the fear, the harm, the many loses, and the deaths that result from it. Despise me for it, I don't care.

Anyone who's inclined to knowing their individuality, and in reading something substantial, I'd suggest this as one helpful tool in understanding what's going on.

Thanks, I understand.

Hi I am looking forward with chatting with all of you on this site. I have the mysterious disease you're talking about. I've had something of this experience for three years. It was two years of symptoms before I was directed to the morgellons.org site. I'm not one to jump quickly to conclusions, but there could be no mistake about the similarities between my experience and what I read on the site. I had not seen anyone to discuss my symptoms, although my family, friends, and clients all listened to my stories about lesions, infections, blood pooling under my skin, pricking, itching, crawling etc. etc.
I know all too well the disbelief of others. It does'nt really matter except for one little thing. What can happen if we are not willing to acknowledge this? What IS happening is it's spreading! I don't waste my time with closed minded people who can't handle reality. I'm a winner. And I'll keep looking for the ones who are my friends and helpers. I believe that it's not what happens to you that matters, It's what you do in response. To anyone else who's living in this mystery, hang in there and take real good care of yourself in body, mind, and spirit. Something I read rescently,was that "nothing can exist unless it is nourished" So maybe the question we need to focus on is "what thoughts, words, actions, are nourishing the existence of morgellons?" Blessings, Victory

The words I publish are truth. No lie, no half truth, nothing.....is as strong or powerful as the truth. The truth is eternal - lies are negative nothings that have no power over eternal truth. The truth regarding the coverup and lies being perpetrated against all the VICTIMS that have this horrible disease referred to as Morgellons or Fiber Disease will be manifested. The truth will manifest soon, showing how the victims were infected, WHO the perpetraitors behind this covert operation are and why there is such an attempt at concealing it. Truth being eternal and stronger than lies and evil-doers, is victorious,eternally and perpetually. Words of truth have the highest power and undo ALL the deception and lies and leave the deceptors IMPOTENT. Amen and amen! There is no power in heaven or on earth greater than TRUTH. Liars and evil-doers always lose.

The words I publish are truth. No lie, no half truth, nothing.....is as strong or powerful as the truth. The truth is eternal - lies are negative nothings that have no power over eternal truth. The truth regarding the coverup and lies being perpetrated against all the VICTIMS that have this horrible disease referred to as Morgellons or Fiber Disease will be manifested. The truth will manifest soon, showing how the victims were infected, WHO the perpetraitors behind this covert operation are and why there is such an attempt at concealing it. Truth being eternal and stronger than lies and evil-doers, is victorious,eternally and perpetually. Words of truth have the highest power and undo ALL the deception and lies and leave the deceptors IMPOTENT. Amen and amen! There is no power in heaven or on earth greater than TRUTH. Liars and evil-doers always lose.

Post #61. Solid.

Dear Lynne, and all the Morgellons sufferer's:

Sorry to hear that you belive you have Morgellons, I know many people, myself included, who suffer from it.

People like the Tall******-guy tell us that "we sound like we are all crazy". Unfortunatly I have to agree with that statement. On the suface we do SOUND crazy to many people. The Mr. Tall******-guy and his cohorts conclude from that - that we ARE crazy. He says it's D.O.P!

People like him are so entrenched in their own unshakeable beliefs, that they can't (their thought process will not allow them to) consiter anything else. Either that, or they have a hidden agenda. They are doctors that have potentially misdiagnosed people as DOP. They should be very afraid. But they are not. They might be ashamed at what they have done; (emotionally & mentally harmed their own patients), the poor people who put their trust in them. But they are not.
They are the ONLY people who could potentially (most directly and most easily) help our poor soles and ravaged bodies and skin. But they can't imagine why we sound so desparate. They give us the cold diagnosis (DOP) that is of no help to us, and they can't imagine why we SOUND so irrational. When we protest to their diagnosis, their unrelenting arrogance convices them that we can't be reasoned with. Since we "can't be reasoned with", they beleive they can't really help us in any way. So they think; why bother triing (wasting their time) to help a crazy-person that can't be reasoned with. They can't afford to have any real compassion for crazy-people. But they will say that they do. They can't afford to sound too "cold", they know that would surely bring on some unwanted criticism from the "sane" people who are watching.

Their reasons for sounding-off loudly to try to cut-off debate on the subject of morgellons are lousy and selfish. They can't afford to spend too much time defending their behavior and (questionable) practices to all-those who might ask, they have other fish to fry - fish (patients) that take less time to cook, and bigger fish that have more money spend. Most of their other patients are much easier to deal with, none of them really require urgent-care or have life altering problems, but even if they do, they just refer them to the other doctors that deal with that stuff.

After-all these dematologists have, over time, methodically shaped their field of medicine to their desires; to make the job as easy and stess free as they possibly can. No ugent-calls, no urgent-care, no bieng on-call, no time to deal with the people (us) who are the ones that are really desparate for their services. Unfortunately we are looking for the type of care that they have forgotten how to perform. They have made their jobs easy and calm and drama-free, and now us Morgellons sufferers have come along theatening to ruin all that for them.

The compassion will only come when they are face-to-face with the law suites placed against them that are now fortold in the cards.

Their defence is to yell from the top of the mountain; to tell all that we are the ones with the unshakeable beliefs. We are the ones that won't listen to logic. We are the ones with the incomplete thought process. We will not consiter anything else.

SOUNDING crazy equals BEING crazy, LOOKING crazy equals BEING crazy - those are the insane!, illogical!, and yes, delusional! statements.

These DOP doctors have no ligitimate training in phycology or phychiatry.

A guy that is standing (alone) across the street from you - is yelling outloud (at nobody) insane and illogical statements & making strange noises and having a conversation with nobody. A person would be tempted to conclude (as a fact) that that person is crazy and delusional and think nothing more about it. Is that a complete and logical thought process? Would you be fooling yourself if you said to the person standing next to you (as fact) "that person is crazy and delusional" (jumping to a conclusion). Or would your logical thought process tell you not to come to that conclusion without investigating for more information and more facts or evidence to the contrary.

You cannot logically come to that conclution without investigating to see if there are any facts or evidence to the contrary.
So your "logical" mind would tell you exactly that. To start and investigation you might try to talk to the person (from a safe distance). You call to the person: "Do you need help? Are you O.K.?"
Depending on what responce you get, you may get the answer that answers all your questions. Or you may get a responce that tells your "logical mind" that still further investigation is requred to make the determination. They are the only TWO possible logical conclusions from the available facts, and (unless you happen to be a psyciatrist with plenty of spare time) you realize the determination would have to be made by someone more qualified than yourself. Those are the only two posibilities for conclutions in your "logical mind". No responce, or a crazy sounding responce from the guy across the street leads your "logical mind" to the 2nd possible conclusion.

Then you get a responce from the guy: The guy says "Oh sorry if a scared you, I'm just rehearsing a musical composition that involves repeating some passages over and over." The Guy then proceeds give some quite believable details. It's nice when you get the answer that quickly resolves the question, unfortunately it's not often that easy.

In the most recent Diagnostic and Statistical Manual of Mental Disorders, a delusion is defined as:

A false belief based on incorrect inference about external reality that is firmly sustained despite what almost everybody else believes and despite what constitutes incontrovertible and obvious proof or evidence to the contrary.

The people like Mr. Tall*******-guy and his cohorts think that their opinions and so-called research by their dishonest coleages constitute incontrovertible and obvious proof or evidence to the contrary. I'm ROTFLMFAO.

We will stand firm. We know the truth. We know that SOUNDING crazy does not equal BEING crazy (to the "logical mind"). Our minds may not always tell us the truth, but with mogellons our body's do tell us the truth. Thats all we need to know that are perfectly sane, even though the Mr Tall******-guy's are triing to drive us insane.

By the way I due urge anybody who thinks or even has the slightest doubt that you may have DOP, to get yourself checked my a psyciatrist. But don't simply trust the OPINION of your dermatologist, and certianly don't take any treatment for DOP without the approval of your psyciatrist.



Lynne,
Sorry to ramble-on so. We are all looking for the beleavable and true answers, and some measure of releif.

You also hang in there and take care of yourself in body, mind, and spirit, and remember; llegitimi non carborundum!!!

I assume you've already been to the MRF site www.morgellons.org

Have you checked-out the web site -- "The New Morgellons Order" at www.TheNMO.org.

There are published articles under the "Relevant Articles" tab.

There is much information on this site and and some fun stuff to help lift our spirits.

Also: The Truth about the DOP Dermatologists (like Mr. Tall*******guy) who use documentation that was written by liars and cheats! (Shame on you and yours for not policing your own).

It's in the pesentation by Elizabeth Rasmussen, Ph.D. "An in-depth study on how 'DOP' is taught, and why it is wrong."
They REALLY don't want you to see that! (It's painfully slow to read but the facts are the indisputable facts).

Good luck to you and all, and the light will be shed on us and THE truth, hopefully soon, including those hiding behind a house of cards.

Lynne,

One more thing, you wrote:
"Something I read rescently, was that "nothing can exist unless it is nourished".

Please remember to question everything you read; Bloodsucking leaches don't need thoughts, words, actions to be nourished, all they need is blood. Morgellons is nourished by our blood and skin, thats all it needs.

The question should be: "What thoughts, words, actions, are preventing the medical community from providing the desperately needed relief we need so-very-much to ease our horid suffering!?" Blessings to you.

Dear Smileykins,

Thanks for your kind and thoughtful responce. You do seem to be a compassionate, kind, and reasonable person. I'm sorry that you had to go through the hell that you had suffered. What we survive serves to make us stronger in the long run.

I'm going away for a while, I will hope to chat with you again in sometime the future.
Good Luck to you

Tallcotton,

Real quick, give me a break! Your own established standards for the diagnosis of DOP CLEARLY state that ALL physical causes, not just parasites must be eliminated (via tests and examinations) prior to rendering a diagnosis of DOP. I guess your not sure where I got my facts, becuase evidently you skipped over that paragraph. Although, I'm not suprised you didn't see it, it might have been in very fine print depending on the author or publisher.

Anyway, Good luck to you man! As for myself, I'll be just fine.

Dear Smileykins,

I meant to include in my last message to you, the following (sorry, my goof) and while I'm at it I'll add a little more:

Although I beleive your thoughts are genuine, you are wrong on the issuue of morgellons. YOU DON'T UNDERSTAND. You don't have all the facts. I'm sorry for you that you have been misguided by your DOP dermatologist freinds. THE ONES THAT HAVE ALL THE ANSWERS ARE NOT THE ONES YOU SHOULD BE LISTENING TO!

At least we can agree one on this:
I'm also upset that people can't take care of themselves properly, as well as others who are supposed to be in their care, and that they're all vulnerable. I don't like the fear, the harm, the many loses, and the deaths that result from it.

I'm also upset that the DOP doctors have misguided you, and can't or are unwilling to help take care of us properly. Instead they are calling us crazy with the all encompassing label of DOP. Also that they convieniently skip over facts documented in their own literature like: DOP is and extremely rare mental condition! They are now throwing the label at people without a second thought, like throwing out candy at a parade. What part of "extremely rare" do they not understand.

I certianly don't despise you for being mistaken and misguided in your beliefs, we all make mistakes. The question is, can you (are you able to) incorporate new facts in your thought process as they are unveiled. Or will you continue to blindly follow the blind.
Take care (:

Tallcotton,

Oh yeah, my phycologist is still waiting for your answers to post #79.